109.celiac Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 2

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from on 2002-09-10

I would like to see the study also. How did they decide there was a gluten reaction? What tests were given?
Kit Kellison

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from on 2002-09-11

could you please send link to this study as I wish to mail this to some Doctors in my area..Thanks, Donna

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from on 2002-09-11

I'd like to find the study also. Thanks so much for the information

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from on 2002-09-12

May I request the same verification. I would also suggest that you forward the information to a physician of my aquaintance who is currently establishing a Celiac treatment center at the Mayo Clinic: schaffner.john@mayo.edu
Thanks

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from on 2002-09-13

Do you have any more details of the study - where did you find the information? I would like to obtain a publication of the actual study. Can you provide a link or source? Thank you so much

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from Peter on 2002-09-17

The Coeliac EU Cluster Scientific Program started in January 2000 with 4million euros of funding.
http://216.239.37.100/search?q=cache:R6XhAZMY1aEC:cdeuepid.uta.fi/CoeliacWeb/cluster\%2520\%2520Annual\%2520report\%2520Y2001.doc+EU+Cluster+Scientific+Program+celiac+coeliac&hl=en&ie=UTF-8

The link above is the html version of the report via google
cdeuepid.uta.fi/CoeliacWeb/ cluster\%20\%20Annual\%20report\%20Y2001.doc
Peter

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from on 2002-10-11

These links are not working for me ... could someone send me a link that works to tara.rosenbohm@enron.com

Re: Anti-tTG blood test shows 1 in 80 celiac in population: from Peter on 2002-10-14

br /> Try this link to the whole cluster project:

http://www.technapoli.it/eucluster/eucluster.htm

DH as a celiac symptom: from on 2002-11-07

br /> For a number of years now I have had terrible skin rashes acompanied with a great deal of blistering which appeared mostly on my legs. Even though I have seen many different dermatologists, no one really could say for certain what was causing this disorder.
It wasn't until I had spoken to my sister, who is now on a gluten free diet for the intestinal part of celiac, that I remembered being diagnosed as a celiac when I was a toddler. At the time in the 50's the general thought was that you would grow out of the condition. As all may well know this is not true. On this information my GP suggested that I see a dietitian to see what they could suggest about the skin problem and overall health in general. The dietitian knew right away what I had based on my background and the type of skin problems that I had been going through.
She explained to me that I have Dermatitis herpetiformis, a condition caused when the intake of gluten is turned into IgA (immunoglobulin A) and is depostied in skin layers. Because of the severe reaction by the bodies immune system to the gluten, antibody cells are produced by the immune system, and these cells inturn attack your skin containing the gluten. She also told me that I might or might not have the celiac intestinal problem related to gluten in my diet.
It was not until 1967 that the medical community linked the DH condition with the Celaic condition. In my case the medical commnunity still does not have a full understanding of this condition due to the long time it took actually determine what was causing my skin problems!
I have been on a gluten free diet for almost a month now, and even though I was told it might take 2 years for the skin reactions to stop, they appear to have stopped altogether. After more than 7 years, this is the first time I have not woken up with burning, itching legs. In addition to this I generally feel much better and more rested after each night's sleep.

If you have friends or family that may have this condition on their skin, I would strongly suggest to them to start a gluten free diet and speak with their GP about testing for the signs of the celiac condition. I have not had the celiac tests yet but I have started the diet and my condition has improved a great deal.


Best regards,

Peter St. Amour

Re: DH as a celiac symptom: from Peter on 2002-11-08

Please let me know what the results of the blood tests show.
I think that there are a large group of people who come out negative on the blood test for the coeliac condition, but should still be on a gluten free diet.

Peter