Re: Gluten sensitivity without celiacs disease: from Peter on 2007-02-08
I don't know of any gluten sensitivity tests which can give accurate and repeatable results for a person who is established on a gluten-free diet.
However the ultimate test is how you respond to a gluten-free diet. If this diet provides a good positive response, then you are best to stick to it whatever labels might be given to test results.
Re: DH as a celiac symptom: from ARLENE MEYERS on 2007-02-26
I WAS BREAKING OUT IN RASH.....EYELIDS, BACK OF EARS AND NECK.....DERMATOLOGIST DIAGNOSED AS EXCEMA/CONTACT DERMITITIS.AND PERSCRIBED STEROID CREAMS. I HAVE READ THAT THESE CREAMS ARE HARMFUL TO SKIN ETC FOR PROLONGED USE.
I TRIED CUTTING OUT ALLERGY FOODS THAT MIGHT BE TRIGGERS AND CONTINUED TO GET THE RASHES MORE THAN NOT.
RECENTLY I CUT OUT WHEAT AND IT HAS BEEN TWO WEEKS AND I HAVE NOT GOTTEN A RASH. I WONDER IF I HAVE CELIAC DISEASE OR JUST AN ALLERGY TO WHEAT?
Re: DH as a celiac symptom: from Peter on 2007-02-26
Arlene. I would suggest that you continue to follow a completely gluten-free diet. The longer that you stay rash free, the more likely it is that you have the Dermatitis herpetiformis variant of the celiac condition. Discussion with your dermatologist might confirm this.
Re: Gluten sensitivity without celiacs disease: from Erin on 2007-03-29
The Gluten free diet will help may conditions. Though doctors will not tell you that diabetes can be cured. Or that MSG causes diabetes, and other issues. Enjoy the gluten free pizza without the peperoni (try canadian bacon). Diabetes can be conquered, and so can eating all the foods you love.
Macaroni and cheese
Rice noodles work best
.4 LBS cheese grated
2 marks of butter
the cheese sauce also works well for nachos
celiac desease: from Katie on 2007-04-13
I have coeliac disease i was diagnosed with it when i was 6 month old some reason i'm a bit small from my friends why is that.
celiac desease: from Peter on 2007-04-13
Katie, you don't say how old your are now.
If you look round a group of people you will see all different sizes.
If you look at a group of children all the same age you will see an even bigger range of sizes. We all grow at different rates and end up different sizes. Size doesn't mean anything.
celiac desease: from ani on 2007-04-19
My 19 year old daughter has been treated for IBS and is still no better some 4 months on. She has had the usual IBS pills and is still in pain.
When she eats she has chronic stabbing pains on both sides and in her lower abdomen. We have noticed that when she eats bread, pizza, noodles and pastry that the pain is much worse. She suffers from terrible wind and swollen abdomen, retching and is tired and listless all the time too. Do any of you think that these symptoms sound like celiac desease?
I would be grateful for your opinion as she is getting depressed because this is making her live a misery.
thank you so much, Ani x
celiac desease: from Peter on 2007-04-19
The symptoms that you describe are all typical of the coeliac condition - but note that there are other possible causes.
Even the depression is regarded as a symptom that is part of the overall picture.
You need to go back to your doctor and alert him to your observation that the pain is much worse after eating foods that contain gluten.
If you have any relatives who suffer from the coeliac condition, then this greatly increases the possibility that this is the cause of your daughter's problems.
Note that you daughter should not try a gluten-free diet until the tests have been carried out, as this can prevent the tests from working.
Re: DH as a celiac symptom: from Mona on 2007-04-28
My Daughter who is 14 was just diagnosed with DH. Her symptoms are the rash on the knees, shoulders, elbows, bottom and back. Sometimes worse then others. We have been doing tests since July and finally got the Diagnosis.
They recommended the gluten-free diet and we have begun but I am such a worry wart. Will she be OK with this? I worry about her friends and going out to eat. I don't want her to feel left out but as of right now , she is handling this better then I am. ANy suggestions or web sites. I just need others to talk to with a postive attitidue and this blog site really seemed to have this.
Re: DH as a celiac symptom: from Peter on 2007-04-28
Once someone has got themselves organised on a gluten-free diet the worries tend to disappear. There is a steep learning curve to start with, but there are many of us who have lived with this diet for a great many years, and don't give it a second thought.
Although the rash is the obvious symptom of DH, there are many other ways that the gluten can affect your daughter, so you may notice a general improvement in her overall health - fewer colds and minor illnesses for example.