124.celiac Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 10

Re Solution to Celiac - Oral Tolerance: from Mac on 2005-07-15

Please be aware that virtually everything which Henry has stated in this thread is absolute nonsense and has no basis in science or medicine. His ideas on the mechanisms of coeliac disease and oral tolerance are completely inaccurate and he clearly has little understanding of the subject. It is this kind of rubbish which gets the Internet a bad name for health information. As someone who has worked on the immunology of coeliac disease for more than 25 years, I can state absolutely that there is as yet no role for oral tolerance in its treatment and that IgG antibodies are entirely meaningless in the disease.

Re Solution to Celiac - Oral Tolerance: from Mac on 2005-07-15

Please be aware that virtually everything which Henry has stated in this thread is absolute nonsense and has no basis in science or medicine. His ideas on the mechanisms of coeliac disease and oral tolerance are completely inaccurate and he clearly has little understanding of the subject. It is this kind of rubbish which gets the Internet a bad name for health information. As someone who has worked on the immunology of coeliac disease for more than 25 years, I can state absolutely that there is as yet no role for oral tolerance in its treatment and that IgG antibodies are entirely meaningless in the disease.

Re Solution to Celiac - Oral Tolerance: from Noelle on 2005-07-17

Henry,

I am interested to know any other results you may have encountered recently? I suffer from a mild gluten sensitivity (I think). Would O.T be effective in treating this?

Thank you!

Re Solution to Celiac - Oral Tolerance: from caz on 2005-10-02

Dont muck about with CD! A little bit of gluten can go a long way to causing very serious damage. My mum died 6weeks ago-only nine months after being diagnosed with enteropathy associated t-cell lymphoma-a result of poorly controlled CD. Please take it very seriously-you cant always see the damage that is going on internally by having small amounts of gluten.

Caz

Re DH as a celiac symptom: from JANET on 2005-11-03

Just discovered your great site... I self-diagnosed myself with DH having had the most awful breakouts -esp. on my lower legs and hands. At first I assumed this was excema as this was something my son had as a child and I had successfully removed him from steroid cream treatment onto a diet cure... But my condition did not respond and, besides, I have a very good diet.

I cut out gluten and within 2 weeks my skin had almost completely cleared up.

I find I have to avoid the following gluten, citrus fruits except lemons, acidy fruits such as strawberries (such a shame), yeast/fermented products, chlorinated water (difficult) for washing etc, most off-the-shelf cleansing products.

I eat almost without exception organic foods, cook with filtered water & drink only good mineral water, organic wine, gluten-free beer in moderation, no fruit juices except apple, use organic cosmetics & cleansing products, take GLA supplements and use tons of organic oils in salads and warm (not hot) cooking - olive, hemp, flaxseed, sunflower, sesame etc.

Village Bakery do some good organic gluten-free products but not enough ready-made gluten-free products are organic and the two need to go together, I find.

Hope this is useful to other DH 'sufferers'.

Re Gluten sensitivity without celiacs disease: from Heila on 2005-11-12

Hi
I have had problems with sinus since childhood. Some kind of allergy that caused asthma and blocked my sinuses and drained into my ear. This has caused deafness in one ear, however have 85 \% hearing left in the other ear. But you can understand that I would like to keep my hearing and try and find the cause. I went for a lot of blood tests, but no cause to the allergy could be found, only grass, cat, dog, etc. I was diagnosed by a herbal doctor, using magnets that I am allergic to maize and wheat. Since then I have cut out maize and wheat product and only have problems again with my ears, if I cheat and have the odd pizza. Due to this I have no asthma, but if the doctors could have helped me sooner, I would not have lost my hearing in one ear. I have to agree that I don't get enough fibre and that causes problems with my colon, however I am trying products like soya yogurt, oats, linseed, lots of fresh vegetables like brocolli soups, to up my intake of fibre. I agree that the doctors should see this as a problem and help us with a diet or advice. Good luck!
Heila

Re Immune System and Celiac: from Joanne vennard on 2006-02-03

my friends daughter (11 years old) has been told here daughter has celiac,her symptoms are

ulscer in the mouth, they are really bad
unwell all the time
tearful
stomach wells up causing sever pain
headaches
but not anemic

wheat count low
gluton high

could any advise please.

joanne

Re Immune System and Celiac: from Peter on 2006-02-03

Check first that this diagnosis has been made by a medical doctor.
If this is so this young girl will have to follow a completely gluten-free diet immediately, and for the rest of her life.

On this diet she should recover her health quickly.

These pages have lots of details about what she can eat
http://www.peter-thomson.com/glutenfree/index.html

Note that she should not eat the following
http://www.peter-thomson.com/glutenfree/black_list_.html

In the UK the coeliac society produces a booklet of suitable manufactured foods.

Peter

celiac desease: from brenda brooks on 2006-04-05

i have just returned from the hospital this morning and been told i have celiac disease, i have to see a dietitian for a gluten free diet but i dont know how long i will have to wait for an appointment,
could anyone suggest a good book that will tell me what i can and cant eat.
many thanks
brenda

celiac desease: from Peter on 2006-04-05

Gluten-free Cookery by Peter Thomson provides a lot of useful information.
See the link to Amazon, on the left of this page.

Peter