126.ceoliacs Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 2

Re ceoliacs: from Kathryn on 2006-09-05

Howdy

After suffering with Chrohnes Disease for the past 28 years (I am now 45) I have been diagnosed with Coeliacs. By accident really while have a colonoscopy. My Chrohnes has been playing up and I think I am sticking to the GF diet - but not sure as the symptoms are similar. I n the past year I have noticed a burning sensation in my intestines at times - is that a ceoeliac symptom.

Just to top it of my 14 yo son has also been diagnosed - fine for him eating at home - but any take away tips for him when he is out with his mates would be appreciated

Have also just returned from a holiday in Vietnam - a fantastic location for Coeliacs - fantastic fresh food...

Re ceoliacs: from Peter on 2006-09-05

Crohn's disease is a label for a syndrome of symptoms that primarily effect the gut where the cause of the problem is not known.

Coeliac disease is the identification of the possible cause of this syndrome of symptoms. That your son is also diagnosed as having the coeliac condition makes it more likely that this is the original cause of your own symptoms.

You should stick absolutely to the gluten-free diet, and over a period of time you should see your symptoms subside as your digestive system starts to heal itself.

A damaged digestive system can also be irritated by foods such as alcohol, caffein, pepper etc and these are best avoided.

The paper refereced below draws attention to the importance of the gluten-free diet.


Tursi A ; Giorgetti GM ; Brandimarte G ; Elisei W
Affiliation Digestive Endoscopy Unit, "Lorenzo Bonomo" Hospital, Andria, Italy. antotursi -at- tiscali.it
Title High prevalence of celiac disease among patients affected by Crohn's disease.
Source Inflammatory bowel diseases. (Inflamm Bowel Dis) 2005 Jul; 11(7) 662-6
Additional Info United States
Standard No ISSN 1078-0998 (Print); NLM Unique Journal Identifier 9508162
Language English
Abstract BACKGROUND Recent literature has shown a correlation between Crohn's disease (CD) and celiac disease, but a prospective study has not been performed. Our aim was to evaluate the prevalence of celiac disease in a consecutive series of patients affected by CD, in whom the disease was diagnosed for the first time. METHODS From January to December 2004, we diagnosed 27 patients affected by CD (13 men and 14 women; mean age, 32.3 yrs; range, 16-69 yrs). In all patients, we performed antigliadin, antiendomysium, and antitransglutaminase antibody tests, and the sorbitol H2 breath test evaluation. In case of antibodies and/or sorbitol positivity, esophagogastroduodenoscopy was performed for a small bowel biopsy. RESULTS Antigliadin, antiendomysium, and antitransglutaminase antibody tests were positive in 8/27 (29.63\%), 4/27 (14.81\%), and 5/27 (18.52\%) patients, respectively, whereas the sorbitol H2 breath test was positive in 11/27 (40.74\%) patients all of them underwent esophagogastroduodenoscopy. Nine of 11 patients showed signs of duodenal endoscopic damage, and 5/9 (55.55\%) showed histologic features of celiac disease (18.52\% of overall CD population studied) 2 showed Marsh IIIc lesions (1 patient affected by ileal CD and 1 affected by ileo-colonic CD), 2 showed Marsh IIIb lesions (all of them affected by ileo-colonic CD), 1 showed a Marsh IIIa lesion (1 patient affected by colonic CD). CONCLUSIONS Prevalence of celiac disease seems to be high among patients affected by CD, and this finding should be kept in mind at the time of the first diagnosis of CD; a gluten-free diet should be promptly started.

Re ceoliacs: from Ffyona moore on 2006-10-06

hi i have had ceoliac disease since i was a kid i was very ill and i am only 18 years old now i was diagnosed when i was ten i weighed 3 stone now im on the gluten free diet i feel better than i did .

Ffyona xx

Re ceoliacs: from Ffyona moore on 2006-10-06

Hi have had ceoliac disease since i was a kid i was very ill i am only 18 years old now i was diagnosed when i was ten i weighed 3 stone. when i started on on the gluten free diet i felt better than i did .for any one who has been diagnosed recently it is weird at first and it does take time to get use to it but if you stick to it you will succeed .

Ffyona xx

Re ceoliacs: from erica on 2006-11-21

gday i am 23yrs old and have the symptoms of ceoliac disease. my Dr has put me on a gluten free diet. i was told there are some wines that are ok to drink does anyone know how to find this info out??

Re ceoliacs: from Peter on 2006-11-21

All good quality wine made from grapes will be gluten-free.

Re ceoliacs: from LORRINE HANCOCK on 2006-11-26

I HAVE HAD CROHN'S DISEASE SINCE 1959 I WAS 6 YEARS OLD, I AM 53 NOW , I HAD A TOTAL COLECTOMY 10 YEARS AGO . I HAVE AN ILEOSTOMY,DIAGNOSED WITH PARKINSON'S DISEASE 2000 , HAD BLOOD TEST MONTH AGO POSITIVE CEOLIAC ALSO DIAGNOSED EPILEPTIC.PLEASE SEND ME A LIST OF FOODS TO ADVOID ND MORE INFORMATION ON THIS DISEASE . THANKYOU. LORRAINE

Re ceoliacs: from LORRINE HANCOCK on 2006-11-26

I HAVE HAD CROHN'S DISEASE SINCE 1959 I WAS 6 YEARS OLD, I AM 53 NOW , I HAD A TOTAL COLECTOMY 10 YEARS AGO . I HAVE AN ILEOSTOMY,DIAGNOSED WITH PARKINSON'S DISEASE 2000 , HAD BLOOD TEST MONTH AGO POSITIVE CEOLIAC ALSO DIAGNOSED EPILEPTIC.PLEASE SEND ME A LIST OF FOODS TO ADVOID ND MORE INFORMATION ON THIS DISEASE . THANKYOU. LORRAINE

Re: ceoliacs: from sue hunt on 2007-02-25

hi my son has coeliac disease and also type1 diabetes what can you give him if a had a bit of gluten by accident

Re: ceoliacs: from rebecca on 2007-03-08

i have just been recently been diagnosed with ceoliacs disease...and i dont see why people find it hard...the hardest thing i found was cutting bread out...and because gluten free bread tastes awful!...i think if you cut bread out of your life alltogether...then it is easier to handle...because all of the other gluten free foods which are availale tastes like the real thing!



when you next go to your dietition speak to her about where you can find tasty gluten free food...dietitions make the disease easier to cope with!