127.ceoliacs Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 3

Re: ceoliacs: from Suki Sandhu on 2007-04-11

Hi,



I was diagnosed with CD 2 months ago and my biggest worry is my hair (only have a third of my hair left and still loads falling out daily) - has anyone had hair loss like this, if so can you tell me how long it takes for the hair to stop falling out and become healthly again.



Is there anything I can take to stop it from falling out?



Regards,



Suki Sandhu

Re: ceoliacs: from Suki Sandhu on 2007-04-11

Hi,



I was diagnosed with CD 2 months ago and my biggest worry is my hair (only have a third of my hair left and still loads falling out daily) - has anyone had hair loss like this, if so can you tell me how long it takes for the hair to stop falling out and become healthly again.



Is there anything I can take to stop it from falling out?



Regards,



Suki Sandhu

Re: ceoliacs: from Di on 2007-06-11

I am currently waiting for tests to confirm CD I have had "IBS" for the last 10 years yet I found out this is the term they use when they are not sure what the problem is. I have all the symtoms and over the years I've always been aware how large my stomach extends after eating certain foods, the pain , and the embarrassment

of having to rush to the toilet sometimes with very little control. I also get very tired my arms and top of my legs ache, to be honest I just want it confirmed that this is what i have got then i can get on and make the changes. I am worried that all my tests will come back clear and i shall be left with the symptoms and pain, surely tho, with the upper part of my stomach extending so much as if i was 9 mths pregnant, and the endless trips to the loo surely something isn't quite right ?, hoping the blood test will show something up.

Re: ceoliacs: from su on 2007-06-17

After suffering from IBS for 30 years, I developed unbearable stomach cramps and wind and my stomach was bloated and tender. Also muscular pains in my elbows and stomach became frequent and severe. My doctor suspected CD and did the usual blood tests. The results showed that I was anaemic, but the antibody test was negative and as a result my doctor refused to send me for an endoscopy. [I got the impression that money was an issue!]. I immediately started a gluten free diet and within 2 weeks my stools were normal [1st time in 30 years] and other symptoms subsided. Recently I bought a ginger cake from the ' free from' section of my supermarket. On the 3rd day of eating it I developed wind and acute diarrhea. I immediately read the ingredients on the cake label, to find that it was wheat free but contained rye. It then took another week to recover fully. On reflection, I think I have had CD for many years, but because I ate very few foods containing gluten I tolerated the uncomfortable symtoms of IBS. I have always been worse on holiday. Because of my IBS I have always stuck to simple foods whilst away. eg continental breakfast, pasta, pizza, all of which have worsened the situation and made me miserable. Other health problems I have suffered include; psoriasis, itchy skin, hives, mouth abcesses [20 in 15 years], tiredness, headache and diarrhea. My aunt had Crohns disease and I am sure my mother showed all the symptoms of CD. I wish now that I had pestered my doctor 30 years ago until a cause for my IBS had been found.

Re: ceoliacs: from christina on 2008-03-08

i've been having many symptoms of ceoliacs, so bad lately i've felt too poorly to go into college, it also runs in my family, i'm still waiting for a diagnosis to know if i do have it or not, but my hair has also been falling out, tons! i'm really worried about it too! i've not read anything about this being a symptom, so for now i'm putting it down to being under a lot of stress from all this

Re: ceoliacs: from RENEE on 2008-03-11

Hi,

I have also been suffering with all the syptoms of Ceoliacs disease too, i went to the doctors and explained that im pretty sure i have it especially as my dad has been diagnosed with it and it is genitic and run in families - so the cahances are very high i have it too- but the problem is that doctors are crap he told me o you prbably have IBS. but i thought well if thats all you have to say then im going to cut gluten/wheat out of my diet completely and see how i feel- i have cut it out for 2 months now and fell so much better- i have more kick for life and am not bloated at all and obviously dont have to go to the toilet as often! and im general much healither! i suggest that your hair loss is due to stress and still eating gluten - give the gluten free diet a try i garuntee you will feel great! its not that hard cutting it out i promise! x

Re ceoliacs: from Shirley on 2008-04-17

Hi to all the Ceoliac sufferers out there...



To help with alot of your question about this disease, and food that you should avoid, PLEASE, see a dietitian who SHOULD supply you with a book that has a really good ingredient list.



This book is titled....THE COELIAC SOCIETY OF AUSTRALIA INC..



IT IS MY BIBLE

Re ceoliacs: from Jane Davidson on 2010-05-11

Hello, I was diagnosed with coeliacs a year and 2 months ago and have struggled with weight gain ever since. It takes alot of effort to loose it, alot more than people without the disease it would seem as i am reducing calories to about 800 a day and exercising everyday for about an hour. I am so confused as according to healthy eating plans and advice, i should be loosing weight. Has my coelicacs got anything to do with this? I saw on gmtv that fat isn't absorbed as well in someone with coeliacs so could this be why? Thanks, Jane

Re ceoliacs: from Rebecca Hughes on 2010-09-04

Hi



I've been told that my ceoliac test was inconclusive however my symptoms would suggest I am. I've been wheat and gluten free for 4 months now and I feel 100\% better. Re weight, before they considered ceolicas I was sent to a metabolic clinic as I enjoy a lot of exercise and don't eat more than 1,400kcals a day, however am around a stone overweight. I was told that again the weight issue is likely to be down to ceoliacs, and yes it is more difficult for us to lose weight. Weight Watchers offered me my money back! The only advice I can attempt is not eating after 6pm, eating a good breakfast, moderate lunch and hardly any dinner. Alcohol to a minimum [as it kills the metabolism, not becuase of the kcals] and exercise 3-4 hours a week (ensuring heart rate is in the fat burning zone).



Hope this helps



Rebecca