148.Coeliac and wheat intollerance Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 3

Re Coeliac and wheat intollerance: from Peter on 2005-09-14

Not everyone who reacts badly to wheat is detected by tests. The only way to really find out is to eliminate ALL wheat, otas, barley and rye and their products from your diet for at least one month, preferably two.
make sure that you eat a healthy balanced diet for this period.
This should be long enough to decide if it really has made a difference.

Peter

Re Coeliac and wheat intollerance: from Elke on 2005-10-26

when wheat intolerant, what grains can you eat? I thought that oats, barley, and rye where ok?

Re Coeliac and wheat intollerance: from lynn on 2005-11-09

Our son is 7 years old and has been sweating for years and has cold clammy attacks. When he was around 1O months old the health visiter told us to seek medical advice she said it was not normal for a baby to be like this. We did seek medical advice several times but no one seemed to listen.The night sweats are really bad and he has been under the hospital for a while, where the consultant has been great, she has done several test and we thought cheese was the problem. He had attacks where he would get severe pain in the stomach and go white and blue around the mouth and would be clammy from head to toe. It was really frightening, he seemed vacant too. For a few months he has been suffereing with a really sore bottom and we were backwards and forwards to our GP who gave us some cream which helped, but it did not stop it totally. On our next visit to hospital we mentioned the sore bottom to the consultant and straight away she said sound like an allergy, he had blood tests done and the results said he was
allergic to wheat, peanuts and soya and was borderline for milk and cheese.


Has anyoune had this problem with the pain and going white and blue around the mouth? and also the sore bottom?

Re Coeliac and wheat intollerance: from sally on 2005-11-12

My five yar old daughter has just been diagnosed as wheat intolerant after 2 years of upset stomachs, cramps etc. Blood test for coeliac was negative but she has improved 200\% on gluten free diet. Also my GP put me on gluten free diet after 10 years of stomach upsets, heartburn, weight loss, sore cracks in mouth, extreme lethargy etc and i also feel fantastic. I had a negative blood test too. Can wheat intolerance be inherited or is it just coincidence. Also, can it develop into coeliac and can we be sure that the blood test results were accurate? The paediatrician says we must rechallenge my daughter in a year..why?

Re Coeliac and wheat intollerance: from Peter on 2005-11-12

Sally,

There is a strong tendency for gluten /wheat intolerance to run in families. i.e it is strongly inherited.
The blood test is not 100\% accurate, but is a very useful tool for the doctor.
There also seems to be a gluten /wheat intolerant condition that is distinct from the condition that is medically defined as 'Coeliac', and is not detected by the blood test.

As you say, it feels fantastic when a change in diet can return you both to health.
There are conditions which children get which then dissapear as they grow older, and if your daughter grows out of this condition it would be to her advantage to know about it. However, since you are displaying the symptoms as an adult, your daughter would not be harmed by keeping to a gluten free diet. If she does appear to grow out of this condition she would still be wise to keep to a very low gluten diet to prevent it recurring later.

Peter

Re Coeliac and wheat intollerance: from Jean Aird on 2006-02-03

My daughter, now 22, used to eat pasta by the bowlful. When she was 16 she started to feel sick, as if she had eaten a huge meal. Her stomach was really bloated and hard and she just felt unwell. Eventually we visited the doctor who said it was IBS and to avoid the foods that upset her. After being refused a referal to a dietician, we went private to an alternate medicine clinic where we saw a nutritionist. Diagnosis after weeks of food elimination was wheat intolerance but also candida of the bowel, possibly cuased by a long term course of anti-biotics. This was also causing problems with so many other foods like dairy produce, natural sugar in fruit. yeast etc. etc. To top it all she had chronic fatigue syndrome (ME). Now she still has to avoid wheat completely and must eat many other things in moderation.
I worry that as a young woman she is not getting enough balance in her diet and is lacking in certain nutrition.
I'd be grateful for any advice or help.

Jean

Re Coeliac and wheat intollerance: from Peter on 2006-02-04

You don't say whether she had an endoscopy before she was diagnosed as IBS. This would show whether or not the lining of the small intestine was also being damaged, and is essential for the diagnosis of the coeliac condition.

These symptoms are typical of a coeliac condition where the person shows almost an addiction to wheat. The damage to the small intesting results in poor uptake of nutrients with lack of energy and symptoms of malnutrition.

Her diet must completely avoid all traces of wheat, barley, rye (and best to avoid oats as well) These can get in to many manufactured foods, including breakfast cereals such as cornflakes.

If she is still avoiding dairy products, she will need to check that she is getting enough iron and calcium. Calcium can be a supplement with vitamin D. iron is best in natural form - liver is a good source. All other nutrients should be easily obtained from her diet of fresh meat, fish, fruit and vegetables, rice and potato.

Peter

Re Coeliac and wheat intollerance: from melissa on 2006-08-15

Hiya,
i am a new CD sufferer who is also intolerant of wheat and the nightshade family iepotatos (I know there is sod all good to eat in my world)
Just curious as to how some of you were diagnosed after a blood test why did i have to have so many invasive and frankly humiliating tests? Also why after just a few days elimination do i get bad cramps still yes feel so much better elsewhere?

Melissa

Re Coeliac and wheat intollerance: from Melissa on 2006-08-15

Well I have the two I believe its called hypersensitive coeliac thats waht my doc tells me anyway. Do you feel you have the same?

Re: Coeliac and wheat intollerance: from Sarah Cohen on 2007-02-14

I was just diagnosed with Coeliac...my symptons were bloating and terrible gas...all the time, no matter what I ate. No weight loss, no anemia. I am also lactose interolerant...and I avoid all dairy and virtually everything that is packaged...it all seems to have some gluten in them...even if it is a small amount. How much gluten is OK - any? After reading on the web about this condition, I learned that even licorice, jelly beans and lipstick have gluten in them. In trying to replace the grocery items I feel I need in order to have a normal eating regimen, I find that they are tasteless. Have any ideas, or brand names of basic items that can be consumed that have some flavor and are not loaded with calories? I also read conflicting information about oats...one site said OK...another said NO. I am new at this and I have always eaten a healthy diet. How does one maintain a healthy balance of vitamins, minerals and other nutrients when you have to avoid so many foods? I was taking a calcium w/D supplement and found it had "starch" as an ingredient...I guess I need to find a new supplement without starch. This is a major life change...and I would like advice about meal planning...eating out (?)...and tolerances when gluten cannot be avoided. Thanks for your help...

Sarah