168.Coeliac Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 4

Coeliac Research: from Ted fuhrman on 2005-09-26

I recently attended a GF seminar presented by a medical internal physician, who has spent many years investigating and researching the celiac disease. During his presentation he noted that oats has always been thought of as containing a protein similar to that in wheat and could cause a celiac reaction. For this reason oats has always been placed on the "do - not -consume" list.

He stated that research has now proven that this is not the case and that oats has been taken off the GF listing. He highly recommended that those with celiac disease to eat oats. This adds to the grain fiber in ones diet. He had no qualms in stating this and went on to say that even in severe cases, oats was fine.

I have been on a GF diet now for 23 years and obviously come from the old school relative to eating oats. Is there a journal artical or organization I could contact to get confirmation of the statements made during this presentation.

If this is now true, has anyone developed recipes utilizing oats?

Any information would be greatly appreciated.

Coeliac Research: from Nicole on 2005-10-01

Ted, I'm not sure of the numbers but my mother found some research in which they made a blood test for oat gluten (the standard blood test for gluten uses wheat gluten) and tested a selection of untreated coeliacs.

A large \% tested positive to oat gluten and a small \% tested negative.
Unfortunatly the test for oats was a research tool only and has not been developed comercally.

I will ask for the links and exact information.

Also personally I 'challenged' myself with oats and found I 'tolerated' 1 meal but became very sick after 3 meals in 3 days containing oats, so I would be disappointed if oats became acceptable in glutenfree labeling.

BTW If you want to cook with oats, when a receipe calls for rice flakes use oats instead and carefully read labels on wheat free products...

Regards
Nicole

Re Coeliac and wheat intollerance: from Elke on 2005-10-26

when wheat intolerant, what grains can you eat? I thought that oats, barley, and rye where ok?

Re Coeliac and wheat intollerance: from lynn on 2005-11-09

Our son is 7 years old and has been sweating for years and has cold clammy attacks. When he was around 1O months old the health visiter told us to seek medical advice she said it was not normal for a baby to be like this. We did seek medical advice several times but no one seemed to listen.The night sweats are really bad and he has been under the hospital for a while, where the consultant has been great, she has done several test and we thought cheese was the problem. He had attacks where he would get severe pain in the stomach and go white and blue around the mouth and would be clammy from head to toe. It was really frightening, he seemed vacant too. For a few months he has been suffereing with a really sore bottom and we were backwards and forwards to our GP who gave us some cream which helped, but it did not stop it totally. On our next visit to hospital we mentioned the sore bottom to the consultant and straight away she said sound like an allergy, he had blood tests done and the results said he was
allergic to wheat, peanuts and soya and was borderline for milk and cheese.


Has anyoune had this problem with the pain and going white and blue around the mouth? and also the sore bottom?

Re Coeliac and wheat intollerance: from sally on 2005-11-12

My five yar old daughter has just been diagnosed as wheat intolerant after 2 years of upset stomachs, cramps etc. Blood test for coeliac was negative but she has improved 200\% on gluten free diet. Also my GP put me on gluten free diet after 10 years of stomach upsets, heartburn, weight loss, sore cracks in mouth, extreme lethargy etc and i also feel fantastic. I had a negative blood test too. Can wheat intolerance be inherited or is it just coincidence. Also, can it develop into coeliac and can we be sure that the blood test results were accurate? The paediatrician says we must rechallenge my daughter in a year..why?

Re Coeliac and wheat intollerance: from Peter on 2005-11-12

Sally,

There is a strong tendency for gluten /wheat intolerance to run in families. i.e it is strongly inherited.
The blood test is not 100\% accurate, but is a very useful tool for the doctor.
There also seems to be a gluten /wheat intolerant condition that is distinct from the condition that is medically defined as 'Coeliac', and is not detected by the blood test.

As you say, it feels fantastic when a change in diet can return you both to health.
There are conditions which children get which then dissapear as they grow older, and if your daughter grows out of this condition it would be to her advantage to know about it. However, since you are displaying the symptoms as an adult, your daughter would not be harmed by keeping to a gluten free diet. If she does appear to grow out of this condition she would still be wise to keep to a very low gluten diet to prevent it recurring later.

Peter

Re Coeliac and wheat intollerance: from Jean Aird on 2006-02-03

My daughter, now 22, used to eat pasta by the bowlful. When she was 16 she started to feel sick, as if she had eaten a huge meal. Her stomach was really bloated and hard and she just felt unwell. Eventually we visited the doctor who said it was IBS and to avoid the foods that upset her. After being refused a referal to a dietician, we went private to an alternate medicine clinic where we saw a nutritionist. Diagnosis after weeks of food elimination was wheat intolerance but also candida of the bowel, possibly cuased by a long term course of anti-biotics. This was also causing problems with so many other foods like dairy produce, natural sugar in fruit. yeast etc. etc. To top it all she had chronic fatigue syndrome (ME). Now she still has to avoid wheat completely and must eat many other things in moderation.
I worry that as a young woman she is not getting enough balance in her diet and is lacking in certain nutrition.
I'd be grateful for any advice or help.

Jean

Re Coeliac and wheat intollerance: from Peter on 2006-02-04

You don't say whether she had an endoscopy before she was diagnosed as IBS. This would show whether or not the lining of the small intestine was also being damaged, and is essential for the diagnosis of the coeliac condition.

These symptoms are typical of a coeliac condition where the person shows almost an addiction to wheat. The damage to the small intesting results in poor uptake of nutrients with lack of energy and symptoms of malnutrition.

Her diet must completely avoid all traces of wheat, barley, rye (and best to avoid oats as well) These can get in to many manufactured foods, including breakfast cereals such as cornflakes.

If she is still avoiding dairy products, she will need to check that she is getting enough iron and calcium. Calcium can be a supplement with vitamin D. iron is best in natural form - liver is a good source. All other nutrients should be easily obtained from her diet of fresh meat, fish, fruit and vegetables, rice and potato.

Peter

Re coeliac: from Peter on 2006-02-17

Not all cases of coeliacs show weight loss, and in some the condition remains without obvious symptoms. The symptoms can vary a lot in how they appear and in their severity - which can make diagnosis difficult.

However you have obviously had a number of quite serious problems, and there is a good chance that these are related to the coeliac condition. Provided that you stick completely to your new diet your health should improve, but it may take several months for the full benefits to be apparent.

People who do not follow their new diet on the grounds that they cannot see the connection between their diet and their health risk much more serious complications developing later.

Peter