169.Coeliac Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 5

coeliac in young children: from Wallace on 2006-03-07

Felicity,
I read your question by chance whilst I was wandering through the gluten free sites as I am a celiac myself. I am a 67 yr old male, quite fit and slim. I was diagnosed only last year after years of feeling sick and stomach pains. When I received the diagnosis I thought the world had ended for me in a way but it is not all that difficult. I know how you must feel about your son.

Well I have to say that I also was told I had a lactose intolerance at first but was told it might go away after a while. In fact, it has gone and I can eat milk products etc with no problem and I hope the same happens for your son.

You ask about the symptoms apart from those you know. Headache is common and a general feeling of being unwell. Bad temper often results and mood swings and even depression. If your son sticks to the gulten free diet, most of the symtoms will go away. He might break out at times and find the symtoms return but they go away each time he stops eating things like wheat pasta, bread, cake etc. You can buy all sorts of gluten free foods now in most supermarkets or even on-line. I make my own bread each weekend. Vegetables, fruit, meats are always good for us all. You cannot go wrong with those as any other child would eat the same.

You son may not like the GF food as a lot of it does taste not all that good and the pasta and bread crumbles so much but it is better than feeling sick all the time. By the way, always toast the GF bread as it tastes so much better. Cut it in small pieces with some spread and he might like that.

The way to look at it is to think that being a celiac is not the worst thing that can happen. Gradually your son will work out what he can and cannot eat. You will be able to tell easily apart from the fact that most children are not good at eating what is given to them even if not celiacs. If he eats what you give him then he is happy no doubt.

Well I wish you and your son and all your efforts the best success. You can email me if you wish and I am happy to try to help.

Regards,
Wallace

Infertility and Coeliac: from Claire on 2006-04-13

Hi there,
I would like a couple of answers to questions I have if thats possible.
Last year I was diagnosed with depression, Ive never actually felt depressed as such, my symptoms were extreeme tiredness. I dont really know how to describe it, i felt that i could'nt concentrate, I was very short tempered, and also could sleep and sleep.
I also suffer with endemetriosis and suffering infertility problems, I sought advice to deal with this a natural way and was advised to do a 28 day detox diet.( meat wheat and dairy free) and although I found this diet really hard I felt great.
so when I completed this diet I stayed off chocolate, caffene and wheat and gluten and limit my dairy intake.
since doing this i have been researching wheat & gluten intolerence, i realise I have had many symptoms such as dermatitis and severe rashes, bloating and I suspected that I was starting with something like IBS.
Although I was diagnosed with deppression last year this has been going on for some time.
My main question is, if i do suffer with this condition apart from infertility problems do you think it would have any effect on miscarrage as I have had several.
I do have a doctors appointment but this is in 3 weeks, I know you cant give medical advice but would appreciate your thoughts on this matter. Thanks.

Infertility and Coeliac: from s) Hin H ; Ford F
Affiliation Centre for Pregnancy N on 2006-04-13

Here are summaries of three recent medical papers linking the coeliac condition to infertility problems and miscarriage. The link is well recognised.
I hope this answers your question.

Peter

1999 Feb; 106(2) 171-3
Additional Info ENGLAND
Standard No ISSN 0306-5456 (Print); NLM Unique Journal Identifier 7503752
Language English
Abstract Because subclinical coeliac disease may decrease fertility or complicate pregnancy, we screened women with recurrent miscarriage of unknown aetiology (n = 63), unexplained infertility (n = 47) and infertility with a known cause (n = 82), for anti-endomysium antibodies in serum to find undiagnosed coeliac disease. One woman (1-6\%) with recurrent miscarriage, another woman (2.1\%) with unexplained infertility and one woman (2.0\%) in the control group (n = 51), were considered to have coeliac disease. We could not demonstrate a higher frequency of coeliac disease in women with infertility or recurrent miscarriage, but suggest that undiagnosed coeliac disease is common in women.

2004 May 17; 180(10) 524-6
Additional Info Australia
Standard No ISSN 0025-729X (Print); 1326-5377 (Electronic); NLM Unique Journal Identifier 0400714
Language English
Abstract Coeliac disease (CD) is caused by a complex immunological response provoked by grain protein in susceptible people. The majority of people with CD are symptom-free adults; the remainder are prone to a bewildering variety of signs and symptoms, ranging from infertility to type 1 diabetes. Many patients with undiagnosed CD spend years seeking help for complaints such as chronic tiredness or mild abdominal symptoms. In primary care, an appropriate target group to test for CD is people with anaemia (especially women), chronic tiredness, non-specific abdominal symptoms (including so-called "irritable bowel syndrome"), or a family history of CD. The response to an appropriate gluten-free diet is often life-transforming for symptomatic patients. Positive serological tests for CD require confirmation by duodenal biopsy and, if confirmed, referral to a dietitian and a coeliac society, followed by a life-long gluten-free diet.

2002; 12(4) 94-7
Additional Info England
Standard No ISSN 1474-9114 (Print); NLM Unique Journal Identifier 101142028
Language English
Abstract Undiagnosed coeliac disease is not uncommon in adults in the UK and can be a cause of unexplained infertility in women. Studies suggest that dietary treatment of women with coeliac disease may result in successful conception. The diet of a woman with coeliac disease during pregnancy is discussed and agencies offering support are listed.

Infertility and Coeliac: from Claire on 2006-04-13

Thank you very much for your reply, this infact does answer alot of questions for me. And will be armed with relevent information when I see my doctor!
I found myself a bit in limbo when i had questions and no answers and now feel much more positive.
I would like to hear from others who are in my situation.
Many Thanks
Claire

Re coeliacs: from mel hayward on 2006-04-27

Hi everyone, just scanning the net on food allergies,( my 6yrold daughter has just been pre-tested ,diagnosed with both ceoliacs& possible under active thyroid after almost three years of pain, stomache cramps irregular bowel movements, SEVERE ALLERGIC RASH ( hence the now testing for allergies )severe migraine, acute asthma & weight gain she weighs over six stones ( being a very active family & making it my priority to prepare fresh healthy meals for my family you can only imagine my despaeration over the three years, why the health proffesion puts it all down to asthma & viruses!! is beyond me.I am also to have tests as i too suffer with severe depresion, migraine, quite awful short term memory loss too which does not help with mood swings as ads to my already sensitive nature & enhances the whole problem , sometimes feel as though i am going mad ) back pain ,nausea, high blood pressure & very odd attacks of hives ( itchy rashes )& have after a two year long hard battle lost 8 stone only for it to start creeping back on ( i run 5km every day )look like a bag of bones to the waist from there on very swollen especiall y around the knees head down look like a size 10, from the hips more of a size 16 .I am releived that i am not suffering in vain & that both myself & my daughter will hopefully get better , reading everyones case studies is quite uplifting as i do not feel as abnormal !!.I too though am a little confused with other peoples stories on coeliacs, as i am suffering with being overweight ( well i was ) & my daughter is medically obese although it is all around her abdomen very swollen & the gp has said tender & full of wind ( she loooks about 9mths pregnant bless her ) i hope so much that teatment will rectify this for her as she suffers so much with both the emotional struggle & pains in her tummy ( she says mummy calpol doesnt work ) & so suffers with the headcahes & crampe etc...HOW COME WE ARE STRUGGLING WITH A WEIGHT GAIN PROBLEM ?. does anybody know. we have our blood tst tomorrow i am not looking forward to that i will let you know the outcome. bye bye for now & just try to keep smilimg everyone MEL & APRIL

coeliac in young children: from justine on 2006-05-16

My son is two and a half, and has been coeliac from the start, though it took 12 months for me to discover. (Also discovered that I am too! ) Yes - the constant diarrhoea was the key, along with a 24hr runny nose and persistent chesty cough. Once I stopped the gluten, the cough was gone in just a week! But other than those symptoms, he was/is a happy kid who seemed unaffected

Like any other kid - if he doesn't like the food, he'll let you know.
My son loves GF pasta, even though I find some brands a bit yucky because I am comparing it to 'normal' pasta, but he doesn't know the difference. I also use lots of vermicilli, brown rice and polenta.
Fresh fruit and veg, meat, rice crackers, dips/hommous, dried fruit, plain popcorn, are all good.

Kai drinks soy milk (again, he doesn't know the difference) and I have recently found lactose-free yogurt in Woolworths, which is great!

I would also suggest doing as much research as you can - there's loads of info out there, probably far more than your GP can give you. There's also lots of cookbooks available and websites with receipes, so try GF muffins, banana breads, biscuits etc. It's been trial and error, but I now have a few staples that I know my son will eat. It means making time for more cooking, but at least I know my son is healthy - and so am I.

You're welcome to email me if you'd like to talk more.

cheers,
justine

coeliac in young children: from Karen Galbraith on 2006-05-24

Hi, my son is 14months and has just been diagnosed with a wheat/gluten intolerance. He was sick every second day and had a swollen tummy BUT he didnt have any diahorrhea he had infact chronic constipation!! We spent 3 weeks in hospital and have just returned home. he has been off dairy products also for the past three weeks but they have re-introduced dairy back into his diet. he is such a happy wee boy now and hasnt been sick at all since gluten has been takenout of his diet but he does still have constipation from time to time so our battle isnt over yet. I am really really struggling trying to find food to give to my son. The doctors want me to give him a balanced diet but he was so ill that he lost a lot of weight and now at 14months only weighs 18lb. The doctors want me to feed him more fatty food but I really dont know where to start!! Any help and advice is so appreciate thank you.
Karen

coeliac in young children: from Peter on 2006-05-25

A teaspoonful of olive oil added to a meal will provide a useful amount of extra energy. It also helps the digestive system absorb vitamins from the food.

Mash potato with a little olive oil.

Include a meal of oily fish a couple of times a week. Tins of mackerel or sardines in brine are a convenient source - pour away the brine and don't add any salt to the meal. Fresh or tinned salmon is also good.

Peter

Infertility and Coeliac: from Melanie Martin on 2006-06-08

I was diagnosed with Celiac disease 7 years ago, at age 26.
I began having irregular periods in my early teens,( missing 3 or
4 months in a row was normal). I had depression, mood swings,
extreme irritability, for years. At age 21 I miscarried at 2 months along, the one and only time I have been pregnant. At age 21 I saw a Doctor due to my erratic mood swings (my husband took me) and my blood tests showed a hormone imbalance.
I was put on the pill- as my body wasn't producing enough estrogen on it's own.
I was told if I wanted children, I'd probably have to seek fertility treatments, as you need balanced hormones to carry through a pregnancy. I believe this was all Celiac disease related. Now, I remain on the pill for life, and follow a gluten free diet. Tiredness is definitely a symptom of gluten contamination- I have that reaction if I have some by mistake as do other Celiacs I've talked to. Celiac disease is responsible for my mood disorder. Miscarriage can be more common in Celiacs- but I have known many Celiac women who have had children no problem- so it is definately possible. I never wanted children so it wasn't an issue for me. I think that if you are unhealthy (as in untrreated Celiac disease) that miscarriage is natures way of taking care of you, as you are not healthy enough to maintain a pregnancy without risk to your own health. Once you are gluten free and get healthy I would think you should be able to carry through a pregnancy. People with Celiacs don't absorb B-vitamins well- B vitamins are important for level moods and not feeling tired.Definitely good to talk to your doctor,a s I'm just giving opinions. Good luck.