170.Coeliac Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 6

coeliac in young children: from paola pittali on 2006-06-19

My son, now 6 has been diagnosed with celiac disease a year ago. We have been following a gluten free diet and he has been very mature about it, excellent in accepting it and even informing others about it. What worries me though is that at times he seems to not be very happy with himself, he is hyperactive, lacks concentration, and does not cooperate well within the family. This is totally in contrast with his school behavior. Could this have to do with CD, or could it be a reaction to everything? Does anybody know anything about it or has experienced anything like this?

coeliac in young children: from naomi o'flaherty on 2006-07-04

Hi there,

it is good to hear from parents in the same situation as me. My 3 and a half year old daughter has just been diagnosed with CD, but the problem is that she is the fussiest eater in the world! she eats no fruit and hardly any vegetables at all, and the only meat she will (sometimes) eat is chicken. This is very hard coming from a healthy eating, all organic mother! I have tried EVERY trick in the book to get her to eat, including junk food. I am in a panic that she will eat nothing at all now. I have a feeling that her very poor appetite is down to the fact that she feels lousy all the time, and once we get rid of the gluten, she will feel better and her appetite will improve. Did anyone find that this was the case with their child?

I would be really glad to hear from anyone!

Naomi

coeliac in young children: from Adrina on 2006-07-12

I know exactly how Naomi feels. My 6 year old has just been diagnosed with CD and is such a fussy eater. We have the added restrictions of Reflux Oesophagitis, lactose intolerance, allerys to preservatives, colours, flavours (including naturally occuring MSG which is in peas and tomatoes which she loved and seems to be in everything) and antioxidants. It is very hard to find anything that she can eat. I have been making everything from scratch but she is always asking for things that her friends have. I have spent so much time online looking for places to buy supplies and almost everything seems to have one of the things in it that she cannot have. I feel like I am going to tear my hair out before I find anything.

I also have a 2 year old and 7 month old and now am worried that they will come up with the same allergies. I know I will be in good standing if they do, though the cost is hard to cope with now as we are a 1 income family.

Does anyone have any suggestions for me on either websites of suppliers, or suggestions of things I could make for her? Any help would be appreciated.

Adrina

Infertility and Coeliac: from Deborah on 2006-08-10

Hi
Does anyone out there have similar problems to my own that can help or give advise. I am a 40 year old women and have been trying for a child for 18 years. I have had 7 pregnancys in total of which two were still born boys. The first was Thomas he had microcephaply ( a massive cyst in place of his brain), the 2nd boy was hydrocephaly (water on the brain). The other pregnancys were miscarrages between 6 weeks and 3 months. I have been tested for every conceivable problem and all results including chromosomes tests have come back normal. I have recently been having bowel problems and pains in my stomach, upon visiting my doctor he suggested that I may have irritable bowel syndrome, he also took some blood and I am at the moment waiting for these results to see if I have celiac disease. Could it be after all these years that my problem for carrying a child and it not developing normally is celiac disease. Is my body not capable of providing a baby with the essential nutrients for normal development and growth? because of this disease. I have read that celiac disease can affect women and cause reccurrent miscarriage and neural tube abnormalities, this seems to be very coincidental with my own circumstances. I have also read that the test results can come back negative although the disease is apparent.
I would apprecaite any comments or information that anyone could give me that could help
Thank you
Deborah

Re Coeliac and wheat intollerance: from melissa on 2006-08-15

Hiya,
i am a new CD sufferer who is also intolerant of wheat and the nightshade family iepotatos (I know there is sod all good to eat in my world)
Just curious as to how some of you were diagnosed after a blood test why did i have to have so many invasive and frankly humiliating tests? Also why after just a few days elimination do i get bad cramps still yes feel so much better elsewhere?

Melissa

Re Coeliac and wheat intollerance: from Melissa on 2006-08-15

Well I have the two I believe its called hypersensitive coeliac thats waht my doc tells me anyway. Do you feel you have the same?

coeliac in young children: from Paula on 2006-08-22

Hi there,
My 7 year old daughter has had tummy troubles for about 2 years now, Doctors said it was constipation.....then someone suggessted that we get her tested for CD, the blood test came back positive but only weakly according to the Doctor, she had a TTG, and normal is 0-20 and her reading was 24. She underwent a endoscopy last week and biopsies were taken nothing showed up....is it at all possible that she is just starting to develop CD?? Does anyone have any feedback for me, please.

coeliac in young children: from elvira on 2006-09-04

hi there please help!!1 just yesterday we found out that my 31/2 yrs old by has CD.. started a couple of months ago with cramping and diarrhea. We started on gluten free diet but now i am ready to pull my hair out. HE is uded to home cooking, so he canno stand the breads, he will not eat vegetables, so wht's left is pasta, chicken and fuit,I am so worried that he 'll get sicker and not better. Does anyone outhtere havce any bread recepies willing to share with me sot hat maybe this gf bread tast more like the regular one? Please e-mail me with your help I really appreciate it


thank you

coeliac in young children: from Peter on 2006-09-04

See the recipes at
http://www.peter-thomson.com/glutenfree/bread.html

Also try the pancakes.

see also

http://www.peter-thomson.com/messageboard/coeliac-celiac/what_you_can_eat.htm

coeliac in young children: from Catherine Wills on 2006-09-15

Peter
As a mother of children with CD in Australia I was wondering if you knew of a chat site or some group were mother's of children with CD can all talk to each other. Sometime we feel pretty isolated here.Although I have too older daughters and myself and we support each other it would be good to talk to other people all over the world on how the cope with it and swap idea's.