196.Diagnosis of Coeliac condition Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes

Diagnosis of Coeliac condition: from hanban_21 on 2007-03-16

Hi all

I am hoping you may be able to give me some advice.

I have been uncomfortable with my "tummy" for about 2 years now and both my doc and myself put it down to IBS.

I have recently looked into Coeliacs and was wondering if this may be my problem.

I suffer with severe bloating and a gurgly tummy after most meals or even when I first wake up.

The last 2 days I have had a very red, blotchy itchy neck too.

I eat a normal diet at the mo, though I think pasta definitely makes my tummy worse the next day.

Hoping someone may be able to relate to these symptoms and advsie me.

Thanks all, I am 28 by the way, female.

Diagnosis of Coeliac condition: from Peter on 2007-03-16

You should definitely ask your doctor to do the tests for the coeliac condition - before you try a gluten-free diet. (The tests won't work if you have already put yourself onto a gluten-free diet)

The symptoms you describe certainly match those shown by many people with the coeliac condition - but there are other causes of similar symptoms.

Even if the tests come back negative it is worth trying a gluten-free diet for several months, but note that it must be completely gluten-free, and allow several months for your body to respond and heal. You should also discuss this with your doctor.

Diagnosis of Coeliac condition: from Peter on 2007-04-03

Ask yourself the question. If you go through this period of eating gluten and being ill...

If the specialist says 'Yes, you are coeliac' or 'No, we cannot confirm you are coeliac'

What difference will it make?
Will you go back to eating gluten, because the doctor cannot confirm that you are coeliac?

Or will you stick to a gluten-free diet because you know that it keeps you healthy?

A gluten-free diet can be a slight inconvenience, but it is a healthy diet. You can buy all your basic food in supermarket like anyone else. You don't need to buy high priced specialist food, or receive it on a prescription.
You are in charge of your own health. There are plenty of people who simply stick with the gluten-free diet. - It is up to you.
(There is also a good chance that improved blood tests will become the standard for the coeliac condition, rather than the endoscopy )

Diagnosis of Coeliac condition: from on 2007-04-06

We paid £250 pounds a year ago (March 06) to have our 9yr old daughter to have blood test to see if there were any food intolerances. We found out that she was intolerant to gluten, wheat, oat, dairy, egg, yeast and maize. Unfortunately our consultant who had been treating our daughter since she was 9 months old for tummy troubles refused to accept that our daughter has coeliac. She has been on a food restricted diet for over a year and is a totally different child. She only has a bad tummy when she has mistakenly eaten something. We find it really expensive because of the yeast intolerance. I agree, there is no way I am willing to put her back on a gluten diet and see her suffering, so we have to put up with the expense. It is very hard going especially as I have a friend who is a Pead Consultant and in her authority the tests we had they accept.

Diagnosis of Coeliac condition: from Nicola Saunders on 2011-02-28


I hope you can offer some advice to me. I had the results of my blood tests this morning showing that coeliac disease was a possible cause of my recent tummy troubles and I have been referred on to a gastroenterologist. The consultation appointment is three weeks away and may necessitate an endoscopy and biopsy. I am happy to try a gluten free diet whilst waiting for this referral but from various threads I have read today, I am not sure whether this is the right thing to do. Should I carry on eating normally, including gluten in my diet? Or should I cut it out so I can tell the consultant that it has helped? Will a diagnosis be affected by my diet or is it a condition that can be proven through the procedures? Although my symptoms have not been pleasant I would not describe them as debilitating so could tolerate continuing with the gluten if necessary.

Thanks in anticipation of your help.


Diagnosis of Coeliac condition: from Peter on 2011-02-28

This is always a difficult question to answer.
Some people will try a gluten-free diet, and if they improve on the diet will stick to that whatever the outcome of further tests.
However, the best diagnosis is made on your condition if you do not change your diet, and a diagnosis can be made more difficult for anyone who has been on a gluten-free diet for some time.
There is also a small element of risk in starting a gluten-free diet and then returning to eat gluten, as symptoms can be made a lot worse.
So with relatively mild symptoms, keeping to your previous diet will aid diagnosis and is unlikely to make your condition worse in the short term

Diagnosis of Coeliac condition: from nicole on 2011-04-02

my self , I had similiar circumstances, it over a year now, i had the tummy problems always in the bathroom and felt like i was hit by a truck, I am 37, 5,5 and weights 110lbs, i was getting anemic and was was losing weight, I ate like a pig and wasn`t gaining anything, i realise that i had gluten allegy, I started eating a gluten free diet and felt great, I told my doctor who did the blood test but wanted me to continue eating gluten but I had one bite and decided, hell no I am not going to suffer 6weeks to proof anything,my test was negative because I han`t had gluten in over 2 months but my doctor advise me not to eat gluten to proof anything to anyone, I eat a gluten free diet, I am getting there slowly but I have so much more energy, dont do it to yourself if you feel better without eating gluten don`t

Diagnosis of Coeliac condition: from Peter on 2011-08-27

A recent article in the Journal of Internal Medicine highlights the complexity of diagnosing the coeliac condition. They also confirm that patients without celiac disease may respond to a gluten-free diet.

What is the use of biopsy and antibodies in coeliac disease diagnosis?
K. E. Evans, D. S. Sanders
Journal of Internal Medicine
Volume 269, Issue 6, pages 572–581, June 2011

Diagnosis of Coeliac condition: from Janet Darbey on 2011-11-03

I agree with you completely, I will not take any gluten just to prove the doctors right or wrong. I went to see a private consultant endocrinologist and he asked me if I had already been tested by biopsy....I told him no as gluten makes me so ill that I had refused to take the test. He agreed that I should not do it just to be labelled, and that he would certify me as celiac if necessary without the biopsy

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