341.Gluten Intolerance and Ulcerative Colitis Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes

Gluten Intolerance and Ulcerative Colitis: from on 2002-08-18

Hello All,

I'm wondering if anyone out there has a gluten intolerance and has had Ulcerative Colits?? I had UC for many years and ended up losing my colon to Cancer because of it. I recently found out I have a Gluten intolerance (scored highly intolerant on a blood test). I did not, however, have the markers for Celiac disease. I don't notice anything unusual (like aggravating allergic reactions, at least externally) when I eat wheat products. I've begun to wonder if the gluten intolerance has been long standing and perhaps exacerbated the ulcerative colitis and at the same time am questioning whether the tests I had done are accurate. . I'm thinking about beginning a gluten free diet soon.However, right now, it seems like a "huge" undertaking especially since I lack any of the outward symptoms that Celiac patients seem to exhibit.

Thanks for any input!

JRWS

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-08-21

I know a woman who was diagnosed with ulcerative colitis. She had part of the rectum removed, but it failed to heal in spite of all treatments and faeces were often spotted with fresh blood and mucus. She has suffered for 30 years, taken all the treatments and shown little improvement.
I suggested she try a strict gluten-free diet, with brown rice and potato and fruit and vegetables providing a reasonable level of soft fibre. The bleeding ceased after 2 months of erratic improvement, but since then she is now free of pain for the first time in 30 years and is free of symtoms now, 12 months later - still on the gluten-free diet and sticking with it

Re: Gluten Intolerance and Ulcerative Colitis: from on 2002-08-22

Thank you so much for your input!! Guess I'll take the "plunge" and start the gluten free lifestyle. Wonder if anyone has any hints on how to start and what staples to buy. I've found some rice based bread as well as some pasta (health food store) here and I know fruits and vegtables and meats are ok. I know there are a number of mail order companies too. That sounds like work though and added expense of shipping.
JRWS

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-08-26

I always advise starting at the supermarket with fresh fruit and veg, fresh fish, fresh meat. Use rice, potato, sweetcorn as the main starch staples. My normal breakfast is 2oz of rice cooked with a few sultanas and a spoon of olive oil in a mug of water. Then serve with a spoonful of yogurt and a spoonful of jam.
I don't bother at all with substitute bread, cakes and biscuits except for special occasions.

Peter

Re: Gluten Intolerance and Ulcerative Colitis: from on 2002-08-27

Dear Peter,

Thanks for another helpful reply!! Now, what are "sultanas"?? This American girl needs to become "hip" on some of your English staples! Also, do you cook the rice (white or brown?) with these sultanas? Do you add the olive oil and make it like a "shake"? It sounds healthy. Do you make your own yogurt?

There is a diet out called the "Specific Carbohydrate Diet" by an Elaine Gottschall (I may be spelling this incorrectly). It has helped a number of people with Chron's and Ulcerative colitis and other gastrointestinal porblems (IBS). I think when people go Gluten free they are incorrporating some of the basics of Gottschall's thinking in the process. She recommends making your own yogurt. I have a lactose intolerance, but supposedly, when one makes yogurt from scratch, the lactose is not a problem.

If you don't eat too many bread products, you must be in great shape. I guess you don't like sweets........


Judy

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-08-27

Take 2oz of easycook long grain brown rice. Add a mug of water plus a tablespoonful of olive oil and a handful of raisins. (I use California dried raisins, sultanas are the same but not as dried)

Cook- simer gently- until tender ( I use a pressure cooker for 15 mins but you don't need to )

easycook brown rice has good fibre and nutritional content. Much better than white rice but still easy to cook.

Put into bowl and add spoonful of yogurt. I use plain, low fat yogurt with an active culture from the supermarket - there shouldn't be any lactose left in this.

Jam is home made with fruit from the garden because I don't like all the additives and poor flavour from bought jam.

And yes, it keeps me fit, as well as the walking over the moors every weekend.

Peter

Re: Gluten Intolerance and Ulcerative Colitis: from on 2002-12-10

My mother-in-law suffers from Ulcerative colitis. Can you advise me about any diets which can help her from getting reccurent flare up's of her condition.

Yours sincerely



Andrew Nicholson
Tel 01452 621508

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-12-11

In the first instance she should discuss this with her doctor. Restrictive diets are not a good idea unles there is some evidence that the colitis has a dietary cause.

Peter

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-03-22

Hi My son has ulcerative colitis, I worked out it was gluten because my other son and myself was having other problems due to a gluten intolerance. He is better now (hopefully) because of his gluten free diet. The site that will help you most on the net is celiac.comwith cooking recipesand research). It's wonderful. It states that you can have negative blood test for celiac disease but still have symptoms. Read Dr. Fines research gluten intolerance. The blood test do not go postive until it has damaged the whole gut and gets into the blood stream then you are very sick with liver, throid, etc wrong with you

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-04-03

Hello all. I am a 27-year old, otherwise perfectly healthy female with Ulcerative Colitis. I do not like to take daily meds, besides vitamins, thus I attempt to control my symptoms through diet. As you noted, Peter, restrictive diets are not wise nor enjoyable, but I am convinced that some items must be removed from the normal diet of one living with UC. For example, popcorn sends me into abdominal and gastrointestinal fits, as do hard nuts and seeds. I have yet to find a way to include any of the aforementioned, even in moderation. I have also noted an intolerance to raisins, corn, and other foods with an insoluble skin. Jam sounds lovely, as long as it does not inlcude berry seeds. My doctor insists that I should be able to eat whatever I like during periods of remission, but I have found that including the "taboo" items above have brought me out of the remission in which I so desperately want to stay. The recommended medication is ASACOL, by means of 3 pills, 3 times per day. Not the end of the world I suppose, but I am looking for a stable, practical, medication-free answer to this pesky disease. Any thoughts