342.Gluten Intolerance and Ulcerative Colitis Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 2

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-04-10

hi, i'm 20years of age and have been suffering with ulcerative colitis for the past six years, i stopped my hospital medication about two years into my illness as the tablets i was taking(mesalazine) gave side effects with damaged my liver. i took a alternative root and tried herbal medication(which is not recommended unless the Dr is fully qualified with a British medical board) however, this has helpped me and as well as my UC my liver is also recovering.For the first time in nearly six years i have not felt better. I thought that this may help you try to find a alternative to ascol because i was also on three tablets three times a day as well as six prednisilone and a enema. Hope this has helpped you. good luck

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-04-10

hi, i'm 20years of age and have been suffering with ulcerative colitis for the past six years, i stopped my hospital medication about two years into my illness as the tablets i was taking(mesalazine) gave side effects with damaged my liver. i took a alternative root and tried herbal medication(which is not recommended unless the Dr is fully qualified with a British medical board) however, this has helpped me and as well as my UC my liver is also recovering.For the first time in nearly six years i have not felt better. I thought that this may help you try to find a alternative to ascol because i was also on three tablets three times a day as well as six prednisilone and a enema. Hope this has helpped you. good luck

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-11-03

Hi I'm a guy of 27 and have been suffering from Ulcerative Colitis for around 10 years now as well as Arthritis, osteoperosis (thanks to all the Prednisalone) and ankelosing spongelitis, I have recently had a real bad flare up and am on the 6 prednisalone, predfoam enamas and other such wonderfully harmfull drugs and have had enough.
Does anyone know of any websites that have a list of useful food infomation as in what to avoid and what to not. I realize a lot of cases are different but their must be some foods that are a real no no and some that are beneficial. Does anyone have any info on wether the friendly bacteria drinks have any use or not. I'm at my wits end. Oh and I apologise for the lousy spelling.

Thanks

Andy

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-11-17

My daughter has a gluten intolerance. She has has the blood test for coeliac disease but it came back negative. As she refuses to have a biopsy done so we cannot go any further medically.

We decided to go on an elimination diet and discovered that any thing containing wheat or gluten would have her rolling on the floor with pain throughout her whole body.

She can tolerate about 30g of oats a day for breakfast but we have to make sure that there are no other traces of wheat or gluten in her diet. This becomes very hard in restaurants and cafes.

I have had to learn how to cook without gluten and have found that dove farm plain flour is one of my main larder products.

I feel that in her case switching her to a gluten free diet has given her a quality of life back.

After reading you e'mail i am now wondering if the small amount of oats each day could still be doing her harm

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-11-30

im 24 yrs old have had ulcerative colitis for 1 year. ive been on the steroids and now none of my medicaton works. i dont know what the next step is to do. i need some help with what to eat every day and dont know what helps. if there is anyone who can help then please feel free to reply, im desprate.

thanks

Richard

Re Gluten Intolerance and Ulcerative Colitis: from nimmala on 2005-04-10

Have you tried white maize meal? You make a porridge out of it (which takes longer to cook than oats) but it is a good source of soluble fibre, which is helpful for both diarrhoea or constipation. We can get it here in Brighton (England) without any problems but if you couldn't get it easily it comes from South Africa and can probably be ordered from any South African food website.

Re Gluten Intolerance and Ulcerative Colitis: from Rita on 2005-04-18

Oh boy do I have a story for you and hopefully this can help some people keep from going through the hell I have gone through and now something else. I suffered for years (19) with what turned into ulcertive colitis. FROM WHAT. Now because I have 3 children that are gluten intolerant, we know it was that which caused my ulcertive colitis. I have an ostomy. BUT now I am suffering from fibromyalgia. So now I can't sleep, I hurt all over and nothing seems to be helping me. BUT you can bet I will be going off of gluten to see if that helps me. And for all of you that think a diet of no gluten is bad, believe me having an ostomy for 30 year is no fun either. And also very expensive.

Re Gluten Intolerance and Ulcerative Colitis: from Susannah on 2005-06-07

Hi everyong
I'm 26 years old and have had Ulcerative Colitis for 11 years. I have just recently attended a health retreat and began a gluten free diet.

I am noticing subtle differences and am so proud of myself for these changes. I would like to have friends with the same problem as me, because it's just so hard being me right now with this ugly disease.

How are you all doing on the gluten free diet?

Speak soon, Susie Marie.

Re Gluten Intolerance and Ulcerative Colitis: from P.S.D on 2005-06-20

Hello Everybody!
Im 13 Years Old and I have had ulcertive colitis, since i was 4...It has been in remishon untill now! And I have just got out of the childrens hospital..and I'm Just Wondering..What Kinda Foods Do I Eat when im still in a flare up??....Any Answers Please Reply as soon as possible Thanks.....P.S.D.

Re Gluten Intolerance and Ulcerative Colitis: from Peter on 2005-06-20

The hospital dietician should advise you what to eat, and should work out a diet specificaly for you.

In general, keep to a healthy, balanced and varied diet, with meat, fish, potato, rice, fresh fruit and vegetables. Avoid any foods that are known to irritate your digestive system, and foods which are often a cause of irritation such as tea, coffee, coke, hot peppers and very spicey foods. Also avoid foods high in wheat fibre such as bran, bran flakes etc. Don't eat the same foods all the time, or every day.
It is better to eat fresh foods rather than manufactured meals which have many different ingredients.

You could keep a diary of what you are eating - which must be detailed to be of any use - and make a note of any symptoms or discomfort of any sort such as headaches, tiredness, as well as any digestive problems. Your dietician would be able to discuss this with you and check you are eating a healthy and balanced diet.
It might even identify a cause for the flare up. However for most cases of ulcerative colitis the cause is not known.