345.Gluten Intolerance and Ulcerative Colitis Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 5

Re: Gluten Intolerance and Ulcerative Colitis: from Melinda on 2007-04-08

hi, I am in limbo awaiting tests and GI consult end of may. have had allergies to beef pork dairy yeast in the past. upon removing them I got better. been having trouble for a little over a year finally tried GF diet and had 11 good days ending with a splurge on mac and cheese..got back on track and it worked again fpr 8..not sure where it went wrong. so went to the allergist since that is where my comfort came from before. i did test slightly pos. for wheat and oats. he submitted the celiac blood work and will see what GI guy says in 2 months..... plan to stick with the GF diet. my family seems to be bothered by my "food tangents" but i think they are more bothered by mom living in the crapper. wish me luck. I am on day 3 after a a BIG flub at my son's birthday. cake and ice cream.. I really am smarter than that.

Re: Gluten Intolerance and Ulcerative Colitis: from Giri on 2007-04-24

Was diagnosed with UC in 2004 when I was 39- have had my share of remissions and relapses, steroids etc. Am on Asacol 2 pills twice a day. UC is really uncommon here in India- in fact I have not met in person a single other UC patient! About a year back I started realising that wheat increases my trouble. I reported this to my gastro - he simply said that it is a good observation and that I must stay off wheat. During remission periods I used to get back to wheat -then have another relapse and off wheat again! I was ignorant of the strong linkage between UC and gluten- which I later found on the net. Was not a big problem since we have plenty of gluten free choice in Indian cuisine. But I now find that beer- the only alcoholic beverage I have and also love to have-contains gluten! Feeling terrible about this- no gluten free beers in India. At this difficult time it was simply so good to stumble onto this site & to write this (in India, the UC patient is very lonely). I have only one question- if I go to a pathology lab, what test should I ask for to confirm if I am really gluten intolerant? Even CD is unknown in India.

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2007-04-24

There are two main tests. Tissue transglutaminase test and endomysial antibody test for diagnosis of coeliac disease and gluten intollerance..

The endomysial antibody test is regarded as the most accurate. Often both are performed.

Re: Gluten Intolerance and Ulcerative Colitis: from Melinda on 2007-04-24

Got all the coeliac blood testing back.. negative... lactose intolerance, negative.

All regular bloodwork, healty... in the middle of 72 hours stool tests.(done while eating with wreckless abandon) are the stool ones more accurate? seems that is the case from something I read. I am being told, so far now by 2 docs (at a US top 100 hospital) that there is no reason I should not eat gluten. Told that the pain and Dia... must be something else. do alot of people just do this without any support from a Dr.?

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2007-04-24

If the symptoms are very clear: gluten=problems
no gluten= no problems, then many people will make up their own minds.

But take care. If symptoms are not clear cut then you may be kidding yourself, suffering from stress induced symptoms, or masking other problems such as developing cancer.

Re: Gluten Intolerance and Ulcerative Colitis: from Adrian Hobbs on 2007-05-02

One of the problems with oats (and maybe rye as well) is that it isn't generally pure. The places it grows often have a fair sprinking of other plants mixed in with it. This can include wheat carried in from neighbouring fields or carried over from a crops in previous years. Unfortunately they all get picked up in the harvesting process.



This means your average oats serving can have a small amount of gluten from wheat mixed in with it (up to 10\% I saw reported in one study). I suspect this is why one is limited to how much oats (and rye) can be eaten before symptoms appear.

Adrian

Re: Gluten Intolerance and Ulcerative Colitis: from Kelly on 2007-06-09

Amazing posts here! I was diagnosed with UC over five years ago. It has been horrendous ride, let me tell you. It wasn't until discovering that my daughter is intolerant to wheat and then that my son is intolerant to gluten that I finally realized that I was having the same problems. My son and I have both had gluten sensitivity testing done and both tests yielded negative results, yet, it is painfully obvious that both of us react terribly to gluten. This is the first spring since my diagnosis that I have been completely flare free. If I ever slip up and get any warning symptoms I have found, by scouring the Homeopathic Materia Medica, that using Mercurius Solubuis 30c will stop things from progressing at all. And to think that it was only this past March that the top doc in the US working with women and IBD at the University of Chicago told me that my only option now would be to have surgery. HA! I wish I could scream this from the rooftops to help all of the others out there suffering from this miserable disease.



I highly recommend at least testing this out. You have nothing to lose, only gain. Best wishes to all.

Re: Gluten Intolerance and Ulcerative Colitis: from Nancy on 2007-06-15

I have been diagnosed with UC for two years (30 years old now), but I think I have had it my whole life to some degree or another. I was put on Asacol by my doctor, which ended up giving me pancreatitus. The doctor said she had three other young females with the same reaction. . . so I thought it would be worth noting here.

Re: Gluten Intolerance and Ulcerative Colitis: from nanette proctor on 2007-09-29

br> I have had problems eating all my life, My grandma called me at 30 years old

and told me I may have celiacs she was worried about me she die afew year before i was sure I had it. but now my sister michelle may have it.

Infact Michelle told me what it was and saved my life. I can't have gluten,

milk products or eggs. I break out in hives and feel like someone is wringing

out my insides. My grandma had it what are our chances number wise.

I have 14 brothers and sisters. And We were raised far away from our

grandma, a really neat red head Irish lady with freakles. Nan

Re: Gluten Intolerance and Ulcerative Colitis: from nanette proctor on 2007-09-29

br> I have had problems eating all my life, My grandma called me at 30 years old

and told me I may have celiacs she was worried about me she die afew year before i was sure I had it. but now my sister michelle may have it.

Infact Michelle told me what it was and saved my life. I can't have gluten,

milk products or eggs. I break out in hives and feel like someone is wringing

out my insides. My grandma had it what are our chances number wise.

I have 14 brothers and sisters. And We were raised far away from our

grandma, a really neat red head Irish lady with freakles. Nan