346.Gluten Intolerance and Ulcerative Colitis Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 6

Re: Gluten Intolerance and Ulcerative Colitis: from Jen on 2008-02-18

I went to the doctor because I was having severe stomach pains, blood in my stools and bloating. My doctor wasn't sure what I had, but suggested I get a blood test for gluten sensitivity. It came back positive. Assuming I had Celiac, she then sent me in for colonoscopy and endoscopy biopsies to confirm. The celiac obiopsy came negative (no damaged villi) but they found UC in my lower intestine. This is where things got really confusing because my gastro doctor said I didn't have to be on a gluten free diet since I had UC and she did not think I had Celiac. However, that early blood test did show that I had a gluten sensitivity so my primary care doctor recommended I still try the gluten free diet. So, I started a strict gluten free diet and my UC symptoms were greatly reduced. I still ended up in the hospital with a flare up last summer so I haven't been completely cured, but the gluten free diet sure makes me feel 90\% better most of the time. I don't know why doctors can't get on the same page with this

Re: Gluten Intolerance and Ulcerative Colitis: from Lauren on 2008-02-21

Hey, I was just wondering, if anyone has put on weight from having a gluten free diet? I have just been diagnosed with a gluten and dairy intolerance and for some reason although ive cut all gluten and dairy out of my diet im really bloated! im just hoping that its my body trying to get used to the change as ive only been following the diet for a few days, can anyone shed any light on this?



Thanks lauren

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2008-02-21

It can take weeks for the digestive system to heal the damage caused by gluten, so don't expect everything to be right straight away.
There are also many traps for the unwary - hidden ingredients in manufactured foods.
The best diet to start with is fresh fruit, vegetables, fish, meat, potato and rice, and avoid all manufactured foods until your digestive system settles down.

Once your digestive system has healed it is possible to put on weight on a gluten-free diet

Re: Gluten Intolerance and Ulcerative Colitis: from Pedro on 2008-02-29

I have heard and read so many things on what I should eat and shouldn't eat. I "officialy" have had UC for 1 1/2 years and recently had a violent flare up. During the flare up I was getting worse and couldn't figure out why. I was eating crackers, bread and water. I supposedley have no gluten Intolerance and was told in the past I can eat whatever I want. After doing some research I decided to go on a gluten free diet, since nothing else seemed to be working. I have gotten a lot better but I have had a very restrictive diet since then.

I see many gluten free recipes that included spicy things, which I know I can't have. I also have read in the past I should not have fresh fruit or vegetables because of the UC. That all vegetables must be cooked and to stay away from certains ones. Can someone provide a list of foods/recipes that would work for someone with UC and wants to be gluten free? Thank you in advance.



...also I currently have an infection in my urine and my doctors can not figure out where it is coming from. I have had bad pains in my kidney area and recently did a renal sonogram and am waiting for the results. Any thoughts

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2008-02-29

Since you have had a positive reponse to a gluten-free diet, I would go forward with the hypothesis that the ulcerative collitis is the result of gluten allergy / intolerance.
I would continue to avoid spicy foods, coffee, alcohol, and soya, but introduce more fruit and vegetables into your diet. If the improvement continues you can broaden your diet while keeping it gluten-free.

Infections plus kidney pains suggest a diagnosis by the professionals is essential, but possibly made worse by adverse reactions to food and a restricted diet

Re Gluten Intolerance and Ulcerative Colitis: from Nina on 2008-03-21

I live in South Africa and suffer from gluten entheropathy, very bad if i just have a bite of gluten. The white maize meal is a staple food for most South - Africans. It is a great replacement for gluten rich foods, you can put it in meatballs and patties to bind it, eat it in the mornings make savoury tarts with it( called Paptert) eat it with milk and sugar and even make a maize bread with it

Re: Gluten Intolerance and Ulcerative Colitis: from tg on 2008-04-16

My son is 8 years old and was diagnosed with UC a year ago. He was not able to tolerate asacol or pentaza due to severe side effects that made him sicker than UC. He takes VSL3 probiotics, fish oil, and herbal tea prescribed by the herbalist and approved by the gastroenterologist. We eliminated all cow products including beef and substitue with goat dairy. We allow him to have spelt products. Since we started on this regimen, he has regular formed bowel movements daily and pain is gone. We can see occasional bloody threads in his stools and are thinking of spelt elimination. I hope this helps

Re: Gluten Intolerance and Ulcerative Colitis: from leila on 2008-06-28

hi there,



I posted quite some time ago, had a really rough ride with my uc, and was on the verge of surgery. Then I found this website, and decided to give going gluten free a go! Has been nearly two years now, and have had no symptoms, have reduced most of my meds (now on 50 mg 6mp, and 1200mg meazavant xl; the equivalent of 3x2 asacol tablets per day) and along with a few supplements (cod liver oil, l-glutamine and seacure tablets) have been able to resume a perfectly normal life, where as I once thought that would not be possible. I eat healthier now than ever, and even eat raw fruit and salads again!

Thank goodness that this site exists, otherwise I would have taken a lot more painful and traumatic route. Good luck to everyone who goes for the gluten free approach, I hope that it works just as well for you.



ps, saw gastroenterologist recently, who said my remission was not to due to my gluten free diet, that it was just a coincidence! Typical!



Leila

Re: Gluten Intolerance and Ulcerative Colitis: from Jessica on 2008-06-28

My partner has Ulcerative Colitis and the asacol only helped lessen the severity of symptoms. It wasn't until she started "The Maker's Diet" that she found complete relief of all GI issues. I was skeptical of this diet style, but a trusted friend recommended it to me. I was skeptical b/c it is partially based on the bible. However, the doctor offered good scientific explanation for most of his recommendations, also. I thought it would be helpful to make this dietary change together, and we are both amazed at the results. She still takes her medication, but it has changed our lives so much. Since changing my eating, I got a full blood workup and it was all perfect. Good luck to you all on your journeys to health.

~Jessica

Re: Gluten Intolerance and Ulcerative Colitis: from Nick on 2008-09-05

Just Wondering....



If UC is a disease involving the large intestine and gluten affects the small intestine does anyone know how a gluten free diet would help? I would think Gluten free would help cure Crohns and not colitis