347.Gluten Intolerance and Ulcerative Colitis Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 7

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2008-09-05

Gluten affects all region of the intestine, and can also affect many other body systems.
The coeliac condition is where gluten causes damage to the villi of the small intestine, but antibody testing now shows that both Crohns and colitis my be closely linked to gluten. Note that this only applies to some cases. There are many other causes of Corhns and colitis

Re: Gluten Intolerance and Ulcerative Colitis: from lynn on 2008-09-14

Yes, you may be right about the oats. Unless the grower and manufacturer of the product test the oats for gluten they may be contaminated by other gluten crops grown in the same fields or near by or in the processing plant. Although oats are not considered a gluten containing food, some people still cannot tolerate them even if the product has been proven gluten free by testing. If you are using oats that have been tested and are gluten free, then I would suggest your daughter cannot tolerate oats. I am gluten intolerant and use a product from the US, Bob's Red Mill Natural Foods. They have gluten free hot cereal called Mighty Tasty GF Hot Cereal and they also have GF Oats. I hope this helps

Re: Gluten Intolerance and Ulcerative Colitis: from Toby on 2008-09-24

Hi, I am a 25 yr old female with Ulcerative Colitis. I have been flaring for the past half a year but only over the past 6 weeks have started to get it under control after being hospitilized. I am on medications such as 6-MP (an auto immune suppressant Drug), Asacol, Prednisone, Cortisone and other enemas. It seems as though my flaring has ceased. I don't know if it's the meds or the foods that I eat which are causing these horrible symptoms. Doctors are telling me not to eat dairy, now they say no gluten...and a whole other list of no-no's. What then, is there left to eat

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2008-09-24

I have now been on a gluten-free dairy-free diet for 28 years. I buy fresh fruit and vegetables, meat, fish, with potato and rice as the main carbohydrate.

I also get out and get plenty of exercise, and have stayed fit and healthy.

It is well worth the effort

Gluten Intolerance and Ulcerative Colitis: from Nikki on 2008-10-17

Wow I have just started gluten free 3 weeks ago, after the doctors just ignoring my tiredness etc and after many different medicines, I have become quite depressedand my cloitis is at its worst, after reading your story I cried with excitement, I am sure it is most of my problem and I am about to start some supplements from my naturopath so I am quite hopeful it will help. I use to run and go to the gym but the last 4 weeks have lapsed into hopelessness and depressed and moody and feel I will never feel happy again but you have given me encouragement, well done for you although I guess if you had of found out earlier it could of saved you from the operations. My brother had severe crohns for many years and is now in remission but lost half his bowel in the process, I have only had colitis for 3 years, most of the time it has been active and bloody frustrating, but I look forward to my diet now. Thanks Nikki

Re: Gluten Intolerance and Ulcerative Colitis: from Nikki on 2008-10-17

Gluten free and go to a naturpath who has experience in the field, get a blood analysis done from the naturpath, I have been at my wits end I have been depressed and felt like dying had enough, works out I have low iron not absorbing Vit. B12 which causes depression and fatigue and food allergies , being tested in melbourne next week(aussie) I am, I know exactly how you feel I have had enough I just want the happy energetic me back. Nikki

P.S. Good Luck

Re: Gluten Intolerance and Ulcerative Colitis: from Christian on 2008-10-31

Just browsing and came across this topic. I had a year and a half long Ulcerative Colitis flare and it seemed like no matter what I tried I could not get it under control. I started experiencing pain furthur up in the intestinal tract that didn't feel like Colitis. After speaking with my doctor, he decided to test for Celiac Disease and sure enough, it turned out I had that as well. After a couple of months on a gluten free diet, my flare subsided and have been basically healthy for the past three years. I did catch the stomach flu, which triggered a small Colitis flare, but was able to keep it small and get back to normal in a couple of months. Not the easiest diet to follow, but well worth the results. You really start wondering how many people with Colitis also have Celiac Disease. It certainly made getting Colitis under control much easier on a gluten free diet

Gluten Intolerance and Ulcerative Colitis: from Jeremy on 2008-12-08

I have been suffering from the syptoms for about a year, Just got diagnosed with UC about 4 months ago. Have pretty much been getting steadily worse and have not had any "remission" in over 6 months. The doc's have me on the steriods 30 mg a day and 9 colazal a day. I also take probiotic pill twice a day, as well as an aloe vera pill twice a day. None of this seems to be helping. Found your site while surfin the net for info. This makes some sense to me because about a year and a half ago I movede in with my girl friend and she is a big " health nut" and got me to cut back on the meats and pot. eat more of the wheats and grains. since my problems started after that, I have decided to try this gluten free diet out. Is there any info about how long till I start to get some relief? I started eating Low/no GLutens two days ago. Am planning on going No Gluten, just haven't gotten to grocery store yet or found everything I need. Any advice or hints you can give me would be helpful. I don't have the bad pains some of you talk about, just mild cramping and constantly RUNNING to the bathroom. This is awful hard since I am a farrier and am constantly in barns, alot of which don't contain bathrooms. It is seriously cutting into my income and life. So any advice you all have would be appreciated. Thank you. 38 year old male, ohio, usa

Gluten Intolerance and Ulcerative Colitis: from E on 2008-12-11

My boyfriend was diagnosed with Ulcerative Colitis his sophomore year of high school. They put him on an exorbitant amount of pills and drugs that only seemed to sort of help. He lost a ton of weight and then gained a ton of weight when they put him on steroids. About 4 years ago he decided to experiment with diet. He's a research junkie and after reading about gluten intolerance he decided to give it a try. He's been gluten free (for the most part) and mostly symptom free since then. Just with in the past few days he's noticed some symptoms so I've been doing some research. His cousin was actually misdiagnosed with UC and then later they found out it was Celiac (by the same doctor). So he is going to get some more blood work done this month. This is all very interesting to me

Gluten Intolerance and Ulcerative Colitis: from Jeremy on 2008-12-20

Just an update. Have went No/Low gluten for 14 days now and swear this has lessoned symptoms by at least half. If not more. Only possible gluten I cn think of that I have had is Maybe if there is any in "carmel color" or heinken beer. Seems there is some debate about heineken beer. It seems to be better than the bud lite though. Not taste wise but my gut wise. As for carmel color.... I haven't had that but once in 14 days. Really think this is working. And am really glad I found this site