349.Gluten Intolerance and Ulcerative Colitis Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 9

Re Gluten Intolerance and Ulcerative Colitis: from Jessi on 2009-11-05

I was diagnosed with ulcerative proctitis and just last week diagnosed also with inactive colitis. I insisted on a blood test for celiac which came back negative but that I have read isn't surprising.

I don't believe in relying on drugs to mask these symptoms so I started on a gluten free diet 4 days ago and I haven't felt this good in 3 years! I totally believe that I am gluten sensitive or have celiac. I believe that this undiagnosed sensitivity has caused the colitis. Even though I am just new to this gluten free diet I am so happy and proud of myself.

In my opinion doctors don't "want" to test and diagnose for celiac or gluten sensitivity because there is no drug that they can prescribe because its all about diet. It's easier for them to label it IBS or colitis

Re: Gluten Intolerance and Ulcerative Colitis: from Tom Contini on 2009-11-06

Hi,



I've been in a bad way, ever sence 93' active duty army, v.a. called it different stuff, but it was figered out in 2000 that it was ulcerative colitis by a civilian doctor. I was put on asacol and think that its great, but it relieves the pain and relapes.( up to 12 pills a day)but I dont think i can live on this so to make this short im o pos blood and eating for my blood type no gluten no recordable results yet but feel better and loss of pounds. but i do beleve it is true ate wheat bread allways, and its in everything

thanks good by

Re: Gluten Intolerance and Ulcerative Colitis: from Karen on 2009-12-10

I guess if you've had the disease and the gluten free works then it must have something to do with it don't you think. My sister has UC, she went gluten free and potato free and she hasn't felt better in the past 3 years. My brother also got it and he refused to go gluten free and he almost died from a hemorage from his bowel that burst from the disease and now has a bag for the rest of his life. So hey if it's working then go for it. I swear it saved her from what my brother went through and he got it after her. Putting steroids into your body until you puff up like a balloon with blisters weeping from your face or changing your eating habits and live normally. Hmmmm that's a hard one.....not

Gluten Intolerance and Ulcerative Colitis: from Adam Paul on 2009-12-21

Yes! I have been a UC suffered for over 20yrs and have found only recently that with my flare ups, has been from Gluten and MSG ! After moving to HK and China noticed a daily flare up and found it to be the gluten in the found and also the daily intake of MSG in all the chinese dishes..



I firmly believe these 2 products been the cause of my long problem.



After 20yrs of finding out what caused it, I am relieved now what causes my flare ups!



I really hope this works for all your readers as it has for me who suffer severe pains and bleeding.



AP

Gluten Intolerance and Ulcerative Colitis: from Aubrey on 2009-12-30

I have had ulcerative colitis for 15 years and suspect a gluten intolerance/allergy. I do't know that I have ever been tested for it, but I also wonder whether a gluten sensitivity is the underlying cause for my colitis (and other autoimmune problems--thyroid, skin, ankylosing spondylitis/arthrits). I plan tp request a blood test at my next dr appt. I am thinking of trying the GF diet myself to see if it helps. Although I would be relieved to kno0w the cause and have hope for improvement, it would also be frustrating since I have had a total colectomy (removed entire large intestine and part of the ileum), I had an ileostomy bag for one year, and a J-puch reconstruct. All of these surgeries are in addition to years of pain and low quality of life, many hospitalizations with flare ups. If it does turn out to be gluten--I know I will wish I had known years ago and could get those years back (I have 3 young children). Good luck! I am interested to hear more

Re Gluten Intolerance and Ulcerative Colitis: from Aubrey on 2009-12-30

YOu sound like me! I too have ulcerative colitis and ankylosing spondylitis as well as thyroid problems. I had my colon removed, had an ileostomy bag for a year and was then reconnected with a J-pouch procedure. I am now wondering if I have underlying celiac disease... I have had stomach problems since infancy--was allergic to soy and milk. Anyway, I am looking for answers and open to suggestions. I am about to start Enbrel injections for the artritis. Can anyone tell me about this medicine? I think I am suppsoed to do weekly injections

Re Gluten Intolerance and Ulcerative Colitis: from on 2010-05-06

I suffered from Ulcerative Colitis in my twenties and went through all of the treatments ( prednisone, hydrocortisone enemas, asulizine, etc.) I then read a few books like the Sugar Blues and The Yeast Connection by Dr. William Crook- and discovered that I had a gluten and wheat intolerance. I followed a strict gluten free diet for many years and stayed in remission! Healtthy. I am now 45 and have been eating out a lot and have run into some wheat tortillas that I thought were corn. I have had terrible bleeding, pain, etc for the last month. I am convinced that there is a connection- despite medical research and doctors advice to the contrary. I would highly recommend that anyone with an Ulcerative Colitis diagnosis try some empiracle testing- striclty remove all wheat and gluten products-including spelt and oats- and take some acidophilous. twenty something years in remission is proof enough for men, good luck

Re Gluten Intolerance and Ulcerative Colitis: from barbara perryman on 2010-07-12

dear P.S.D., first of all you have my sympathy. I am 57 yrs old, and have had UC for more than 3 yrs, and it is the most devistating thing that has ever happened to me. I am now going on a Gluten Free diet hoping that it will give me some relief from this horrid disease. When I am having a flare up, I eat a lot of mashed potatoes, and baby rice cereal with banana. On line you can find seveal Low Residue Diets, which can help too. I use wet heat with a towel on my tummy to help with the pain, but the prednisone, and mercaptopurine seem to help end the flare up. I am on 9 Colozal a day for maintenance too. I am hoping that new research will come soon to really give us some hope. Join the CCFA as soon as possile. They have a lot of information for young people like yourself. Best to you.

Barbara

Gluten Intolerance and Ulcerative Colitis: from Elle MacCallister on 2010-07-16

Two years ago I met a wonderful man with ulcerative colitis. He was on seven medications when we met.

I had recently been diagnosed with Meniere's Disease (inner ear, I have issues eliminating sodium from my body). During the diagnosis phase before I knew what I had, I began a series of diets to determine whether my problems were food/food allergy related. As a result of all the various food eliminations, and reading the labels on all the foods I was eating, I became very aware of the types of nutrients and chemicals I was putting in my body. I eat only complex carbohydrates, and almost no processed food. I try to limit my dairy to one or two servings per day. I also eat a large amount of raw and gently steamed fruits and vegetables. I get my protein and omega3s/6s from Hemp Protien Powder and fish and some chicken with a very rare addition of red meat.

The reason I spilled all that about me is that as our relationship progressed, he began to eat more like I do. We recently moved in together and I do all the shopping and almost all the cooking. He has only had one flare up since we started living together and thats the second one since we've met. According to him they've not only reduced in frequency, but also in length and severity. He is no longer on predisone or the other immuno suppressers and steroids he used to take. He takes calcium, a multi vitamin and fish oil, along with 3 other medications in the morning, which are folic acid, perscription strength omeprazole (150-200mg), and sulfasalazine. His last colonoscopy, the MD said that on a scale of one to ten, one being the least severe and ten being the most severe, the disease ranked a 2. The previous year the disease ranked a 7.

Before we started seeing each other and moved in together his diet consisted largely of cheese, simple carbohydrates like flour tortillas and bread, and large amounts of other dairy products and fast food.

I know it's just anecdotal evidence, and what has worked for us may not necessarily work for you, but it may help which is the reason I'm throwing it out here, into the void of the internet.

Elle

Gluten Intolerance and Ulcerative Colitis: from Jo on 2010-08-21

I am a 27-year old male and was diagnosed with indeterminate colitis last year. On first presentation I had sub-total colectomy, and now have an ileostomy. I am currently still experiencing inflammation of the remaining part of the colon and rectum despite them not being used for any digestive function, and am wondering if some kind of allergy or food sensitivity may have caused or exacerbated the original problem and may now still be having a negative effect. Does anyone know if altering diet would have any effect on the inflammation in the rectum and remaining colon despite it not having any remaining digestive function? It now seems likely that I will have to have the remaining colon and rectum removed (unless a definite diagnosis of ulcerative colitis can be made), but I would also like to know whether reducing the inflammation would make it more likely that I could instead have an ileopouch creation, or could reduce the chances of developing Crohn's. Can anyone help