354.Gluten intolerance Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes

Gluten intolerance and Pain: from on 2001-12-01

Hello,
I believe that I may be Gluten intolerant and have spent alot of time searching the web for information to help me. This past year I began having severe joint pain whenever I ate alot of bread. I was making homemade bread at the time and discovered the connection when I went two weeks without doing this. I always had a mild reaction to MSG in restaurants. Now I am having more and more episodes. I need help understanding the symptoms. I show headaches, congestion and joint pain in my shoulders, elbows,wrists, fingers, knees and ankles.Symptoms show between 1 hour to 24 hours after eating a offending food. I do best when I don't eat bread but I am confused as to why I sometimes show these symptoms when eating other foods. The USA does not have many DR.s who recognise or do tests for this disease. Any help you can give me is appreciated!
Is there any list available for how to read ingredients on packaging to discover Gluten?
Thanks!
Sue

Re: Gluten intolerance and Pain: from on 2001-12-02

HTML>Your symptoms are shared by many people who are intolerant of gluten. Joint pain occurs with a moderate frequency.
Variation in time between eating gluten and onset of symptoms is also common.

However there are many other conditions that can produce such symptoms, so do discuss this with your Doctor.

I simply avoid all manufactured foods that may have multiple ingredients and eat rice, potato, maize, meat, fresh veg, fish etc. This can be a very healthy diet and avoids the risk of unknowingly eating gluten from wheat, oats , barley or rye.
If all your symptoms clear after a month on this diet, then you have probably found the cause, but remember that a doctor can do blood tests for some gluten allergy before you change your diet, but not after.

Peter

Re: Gluten intolerance and Pain: from on 2001-12-05

I was medically diagnosed in '94 by jejunem biopsy, and I too have excrutiating bone and joint pain. So bad recently that I had to go to A & E, the consultant I saw was knowledgeable enough of coeliac disease to want to X-ray my foot [source of current pain]. He said my bones were so thin [osteoporosis] that he recommended to get a bone density test done and that there is treatment. I have also read that osteoporosis can be reversed. Is this correct. Also, if so, will the pain reduce, or is it always due to inadvertantly eating product with gluten in it?
Regards
Jean Hill

Re: Gluten intolerance and Pain: from on 2001-12-05

HTML>I try and make sure my calcium intake is high by eating fish with bones - cheap tin salmon and sardines, low fat natural yogurt and also osteocare tablets.
Calcium uptake can be reduced if the digestion is not fully recovered.

Peter

Re: Gluten intolerance and Pain: from on 2001-12-06

Everything I learn here is so Helpful. I had test done for everything from Thyroid to Diabetes and everything was negative. I discovered my guten intolerance by a lucky chance! I have been Gluten free for 5 days total now and am feeling better than I have in 6 months! All the joint pain is gone and I am ready to return to the gym and get my health back! I gained 30 pounds during this "down" time.
If any one has a list of items that can be bought off the store shelves I would love to have it. I have found the health food stores a valuable resource but wonder what I can also buy at the store. I have started to inform myself with books and research. A site like this is so wonderful

Re: Gluten intolerance and Pain: from on 2002-01-21

Hi, I am from australia, so I don't know how the food packaging and labeling system is in the US, But in Australia it is now compulsoy for companies to clearly label the ingredience in all foods. This is very handy for me, as I am not only gluten intollerant but insulin intollerant too. But I am guessing that all labels and food numbers should be the same. Look on the ingredience list and it should tell you. Avoid a product if it has items like modified maize starch, thickener 1441 (or a 4 digit number similar to that) I have also discovered recently that mars peanut m&ms (a chocolate covered peanut from the mars company) have glucose derrived from wheat in their chocolate, so now I am checking all mars products. Checking all the labels of the products you buy can take a while but it is worth it in the end. Also check the cosmetic and hair care products you buy, as the can also contain products (like wheat) in them.

Melanie

Re: Gluten intolerance and Pain: from on 2002-04-12

I am exploring whether or not I am gluten intolerance based on a blood test and have further tests pending. What about pop and diet pop? Do they have offending ingredients

Re: Gluten intolerance and Pain: from on 2002-04-16

I think that most pop is OK but avoid barley waters and cloudy lemonade

urine test for gluten intolerance: from on 2002-04-22

Are you aware of any such test--if so what literature is there to support it and where can it be done

Re: urine test for gluten intolerance: from Peter Thomson on 2002-04-22

I am not aware of any such test.

Peter