Re: urine test for gluten intolerance: from on 2002-05-10
Testing for Urinary Peptides
Because modification of the diet is far less invasive or harmful than most interventions, it would seem logical to try this method. Many autistic children, however, have such finicky eating habits that the idea of cutting anything they will actually eat out of their dietary repertoire, strikes fear the hearts of their parents. For this reason, some might prefer to test their child's urine for the presence of the urinary peptides found by Reichelt and others. If there are no peptides found, it is unlikely that the diet would help the child. However, if the peptides are present and are escaping from the gut into the bloodstream, it is believed that they can "mimic" neurotransmitters and thus result in the scrambling of sensory input.
There is only one laboratory in the US (that I know of) that is doing this testing. Because it is part of the lab's research, there is no charge for the testing. Directions for the collection and shipment of the specimen can be obtained by calling Dr. Robert Cade at the University of Florida at Gainesville. His assistant, Malcom Privette can be reached at 352-392-8952. Please note: a few parents have told me that Dr. Cade is no longer testing urine; I spoke with his secretary in May, 1997, and testing is still being conducted.
If the test is positive for urinary peptides, you will still not know whether the problem is casein or gluten (or both). Dr. Cade asks that participants also have a blood test done (by another lab and at a cost of $50) which should determine which protein is problematic. Mr. Privette can give you this information too. Blood serum is assayed for IgA and IgG antibodies to the following proteins: gliadin, gluten, lactalbumin, beta-lactoglobulin, casein and ovalbumin
Gluten Intolerance and Ulcerative Colitis: from on 2002-08-18
I'm wondering if anyone out there has a gluten intolerance and has had Ulcerative Colits?? I had UC for many years and ended up losing my colon to Cancer because of it. I recently found out I have a Gluten intolerance (scored highly intolerant on a blood test). I did not, however, have the markers for Celiac disease. I don't notice anything unusual (like aggravating allergic reactions, at least externally) when I eat wheat products. I've begun to wonder if the gluten intolerance has been long standing and perhaps exacerbated the ulcerative colitis and at the same time am questioning whether the tests I had done are accurate. . I'm thinking about beginning a gluten free diet soon.However, right now, it seems like a "huge" undertaking especially since I lack any of the outward symptoms that Celiac patients seem to exhibit.
Thanks for any input!
Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-08-21
I know a woman who was diagnosed with ulcerative colitis. She had part of the rectum removed, but it failed to heal in spite of all treatments and faeces were often spotted with fresh blood and mucus. She has suffered for 30 years, taken all the treatments and shown little improvement.
I suggested she try a strict gluten-free diet, with brown rice and potato and fruit and vegetables providing a reasonable level of soft fibre. The bleeding ceased after 2 months of erratic improvement, but since then she is now free of pain for the first time in 30 years and is free of symtoms now, 12 months later - still on the gluten-free diet and sticking with it
Re: Gluten Intolerance and Ulcerative Colitis: from on 2002-08-22
Thank you so much for your input!! Guess I'll take the "plunge" and start the gluten free lifestyle. Wonder if anyone has any hints on how to start and what staples to buy. I've found some rice based bread as well as some pasta (health food store) here and I know fruits and vegtables and meats are ok. I know there are a number of mail order companies too. That sounds like work though and added expense of shipping.
Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-08-26
I always advise starting at the supermarket with fresh fruit and veg, fresh fish, fresh meat. Use rice, potato, sweetcorn as the main starch staples. My normal breakfast is 2oz of rice cooked with a few sultanas and a spoon of olive oil in a mug of water. Then serve with a spoonful of yogurt and a spoonful of jam.
I don't bother at all with substitute bread, cakes and biscuits except for special occasions.
Re: Gluten Intolerance and Ulcerative Colitis: from on 2002-08-27
Thanks for another helpful reply!! Now, what are "sultanas"?? This American girl needs to become "hip" on some of your English staples! Also, do you cook the rice (white or brown?) with these sultanas? Do you add the olive oil and make it like a "shake"? It sounds healthy. Do you make your own yogurt?
There is a diet out called the "Specific Carbohydrate Diet" by an Elaine Gottschall (I may be spelling this incorrectly). It has helped a number of people with Chron's and Ulcerative colitis and other gastrointestinal porblems (IBS). I think when people go Gluten free they are incorrporating some of the basics of Gottschall's thinking in the process. She recommends making your own yogurt. I have a lactose intolerance, but supposedly, when one makes yogurt from scratch, the lactose is not a problem.
If you don't eat too many bread products, you must be in great shape. I guess you don't like sweets........
Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-08-27
Take 2oz of easycook long grain brown rice. Add a mug of water plus a tablespoonful of olive oil and a handful of raisins. (I use California dried raisins, sultanas are the same but not as dried)
Cook- simer gently- until tender ( I use a pressure cooker for 15 mins but you don't need to )
easycook brown rice has good fibre and nutritional content. Much better than white rice but still easy to cook.
Put into bowl and add spoonful of yogurt. I use plain, low fat yogurt with an active culture from the supermarket - there shouldn't be any lactose left in this.
Jam is home made with fruit from the garden because I don't like all the additives and poor flavour from bought jam.
And yes, it keeps me fit, as well as the walking over the moors every weekend.
Re: Gluten Intolerance and Ulcerative Colitis: from on 2002-12-10
My mother-in-law suffers from Ulcerative colitis. Can you advise me about any diets which can help her from getting reccurent flare up's of her condition.
Tel 01452 621508
Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2002-12-11
In the first instance she should discuss this with her doctor. Restrictive diets are not a good idea unles there is some evidence that the colitis has a dietary cause.
Does anyone know of UK Gluten intolerance testing: from on 2003-05-09
I know there isn't a test, per say, but any info on any clinic that deals with Gluten Intolerances would be appreciated