355.Gluten intolerance Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 13

Re: Gluten intolerance and severe joint pain: from Peter on 2009-11-21

Hans ZJ
Affiliation: Yankton Bone Joint & Sports Medicine Center, Yankton, SD, USA.
Title: Celiac disease: its implications for orthopaedic nursing.
Source: Orthopaedic nursing / National Association of Orthopaedic Nurses (Orthop Nurs) 2008 Sep-Oct; 27(5): 291-4; quiz 295-6
Additional Info: United States
Standard No: ISSN: 0744-6020 (Print); 1542-538X (Electronic); NLM Unique Journal Identifier: 8409486
Language: English
Abstract: Celiac disease (CD), also known as gluten-sensitive enteropathy, is an inherited autoimmune disease that can lead to multisystem effects. Left undiagnosed and untreated, it has severe orthopaedic implications involving osteoporosis and unnecessary treatment of joint pain, which could be avoided. The orthopaedic nurse may have thought that CD was primarily an abdominal disorder. We need to be aware of the potential practice implications in orthopaedics by understanding the disease, its diagnosis, and treatment. Furthermore, orthopaedic nurses can contribute to current research by studying the relationships between CD and orthopaedic problems

Re: Gluten intolerance and severe joint pain: from Peter on 2009-11-21

Slot O ; Locht H
Affiliation: Department of Rheumatology, Copenhagen County Hospital Gentofte, Hellerup, Denmark.
Title: Arthritis as presenting symptom in silent adult coeliac disease. Two cases and review of the literature.
Source: Scandinavian journal of rheumatology (Scand J Rheumatol) 2000; 29(4): 260-3
Additional Info: NORWAY
Standard No: ISSN: 0300-9742 (Print); 1502-7732 (Electronic); NLM Unique Journal Identifier: 0321213
Language: English
Abstract: We report 2 cases of adult silent coeliac disease (CD) presenting with arthritis of a knee and a sacro-iliac joint, respectively. In both patients the arthritis was relieved on a gluten free diet. The literature on arthritis in adult CD is reviewed

Re: Gluten intolerance and severe joint pain: from Peter on 2009-11-21

Author(s): Bourne JT ; Kumar P ; Huskisson EC ; Mageed R ; Unsworth DJ ; Wojtulewski JA
Title: Arthritis and coeliac disease.
Source: Annals of the rheumatic diseases (Ann Rheum Dis) 1985 Sep; 44(9): 592-8
Additional Info: ENGLAND
Standard No: ISSN: 0003-4967 (Print); 1468-2060 (Electronic); NLM Unique Journal Identifier: 0372355
Language: English
Abstract: We report six patients with coeliac disease in whom arthritis was prominent at diagnosis and who improved with dietary therapy.

Joint pain preceded diagnosis by up to three years in five patients and 15 years in one patient. Joints most commonly involved were lumbar spine, hips, and knees (four cases). In three cases there were no bowel symptoms. All were seronegative. X-rays were abnormal in two cases. HLA-type A1, B8, DR3 was present in five and B27 in two patients. Circulating immune complexes showed no consistent pattern before or after treatment. Coeliac disease was diagnosed in all patients by jejunal biopsy, and joint symptoms in all responded to a gluten-free diet. Gluten challenge (for up to three weeks) failed to provoke arthritis in three patients tested. In a separate study of 160 treated coeliac patients attending regular follow up no arthritis attributable to coeliac disease and no ankylosing spondylitis was identified, though in a control group of 100 patients with Crohn's disease the expected incidence of seronegative polyarthritis (23\%) and ankylosing spondylitis (5\%) was found (p less than 0.01). Arthritis appears to be a rare manifestation of coeliac disease. This relationship may provide important clues to the role of gastrointestinal antigens in rheumatic diseases

Re: Gluten Intolerance and Ulcerative Colitis: from Karen on 2009-12-10

I guess if you've had the disease and the gluten free works then it must have something to do with it don't you think. My sister has UC, she went gluten free and potato free and she hasn't felt better in the past 3 years. My brother also got it and he refused to go gluten free and he almost died from a hemorage from his bowel that burst from the disease and now has a bag for the rest of his life. So hey if it's working then go for it. I swear it saved her from what my brother went through and he got it after her. Putting steroids into your body until you puff up like a balloon with blisters weeping from your face or changing your eating habits and live normally. Hmmmm that's a hard one.....not

Gluten Intolerance and Ulcerative Colitis: from Adam Paul on 2009-12-21

Yes! I have been a UC suffered for over 20yrs and have found only recently that with my flare ups, has been from Gluten and MSG ! After moving to HK and China noticed a daily flare up and found it to be the gluten in the found and also the daily intake of MSG in all the chinese dishes..



I firmly believe these 2 products been the cause of my long problem.



After 20yrs of finding out what caused it, I am relieved now what causes my flare ups!



I really hope this works for all your readers as it has for me who suffer severe pains and bleeding.



AP

Gluten intolerance: from Aubrey on 2009-12-30

I am checking out info on the web about celiac disease. I have never been tested but plan to ask my doc to do this. I have had ulcerative colitis/crohn's disease, thyroid diseas (Graves), losing skin pigment in symmetrical pattern all over the body (vitiligo) and I have just recently been diagnosed with ankylosing spondyltis (type of arthritis). Doctors have also suspected Lyme's disease and I was told that I probably have fibromyalgia as well. My endocrinologist has concerns about persistent vitamin deficiencies that show up in my bloodwork, but my colon doc says that it is probably just a poor diet... I am wondering is it possible that I actually may have celiac disease or gluten intolerance that is an uderlying cause of all my autoimmune problems? Is it possible that I have not ever been tested? I find it hard to believe that my doctors may not have ever tested me for this prior to all of my intestinal surgeries, etc (including the total removal of my large intestine, an ileostomy bag and J-puch reconstruction). WOuld be great if I could feel better through a gluten-free diet and I am considering just trying it on my own, but I am not sure if there is a reason to get a diagnosis first... ANy guidance or advice would be appreciated. I am 35 and have 3 children but most days I feel like I am in my 80s. SOunds like many can relate to this feeling unfortunately

Gluten Intolerance and Ulcerative Colitis: from Aubrey on 2009-12-30

I have had ulcerative colitis for 15 years and suspect a gluten intolerance/allergy. I do't know that I have ever been tested for it, but I also wonder whether a gluten sensitivity is the underlying cause for my colitis (and other autoimmune problems--thyroid, skin, ankylosing spondylitis/arthrits). I plan tp request a blood test at my next dr appt. I am thinking of trying the GF diet myself to see if it helps. Although I would be relieved to kno0w the cause and have hope for improvement, it would also be frustrating since I have had a total colectomy (removed entire large intestine and part of the ileum), I had an ileostomy bag for one year, and a J-puch reconstruct. All of these surgeries are in addition to years of pain and low quality of life, many hospitalizations with flare ups. If it does turn out to be gluten--I know I will wish I had known years ago and could get those years back (I have 3 young children). Good luck! I am interested to hear more

Re Gluten Intolerance and Ulcerative Colitis: from Aubrey on 2009-12-30

YOu sound like me! I too have ulcerative colitis and ankylosing spondylitis as well as thyroid problems. I had my colon removed, had an ileostomy bag for a year and was then reconnected with a J-pouch procedure. I am now wondering if I have underlying celiac disease... I have had stomach problems since infancy--was allergic to soy and milk. Anyway, I am looking for answers and open to suggestions. I am about to start Enbrel injections for the artritis. Can anyone tell me about this medicine? I think I am suppsoed to do weekly injections

Gluten intolerance: from Peter on 2009-12-30

Aubrey

There is quite a high possibility that all your problems have a single cause. They can all be the result of an intolerance to gluten, and the adverse reactions to soy and milk are typical of this as well.
It is very important that you have the blood tests before you start as gluten-free diet, but as soon as these are done you could start a gluten-free diet - it must be completely gluten-free to be effective.

The tests may be negative, but you may still find the gluten-free diet very effective.

There is another condition called the 'leaky gut syndrome' which can also produce this typical range of symptoms. It is partly the result of too much fine grains of food being absorbed by the gut lining without proper digestion, and causing inflammation and autoimmune response throughout the body. Avoid products made from fine flour when you try the GF diet. Eat potato, rice, quinoa, sweetcorn rather than GF bread, cake and biscuits

Re: Gluten intolerance and Pain: from Margaret Pickering on 2010-01-15

Hi, My daughter was diagnosed with RA but she did a food elimination diet and was much improved. However, due to a lot of weightloss she now is eating all the foods she shouldn't. My question is, did anybody actually feel worse before feeling better when eliminating gluten. I seem to remember that when she first eliminated gluten she was in so much pain but then it went away.



Any help would be gratefully received, plus help with other foods to eliminate such as aspartame.