Re Gluten Intolerance and Ulcerative Colitis: from on 2010-05-06
I suffered from Ulcerative Colitis in my twenties and went through all of the treatments ( prednisone, hydrocortisone enemas, asulizine, etc.) I then read a few books like the Sugar Blues and The Yeast Connection by Dr. William Crook- and discovered that I had a gluten and wheat intolerance. I followed a strict gluten free diet for many years and stayed in remission! Healtthy. I am now 45 and have been eating out a lot and have run into some wheat tortillas that I thought were corn. I have had terrible bleeding, pain, etc for the last month. I am convinced that there is a connection- despite medical research and doctors advice to the contrary. I would highly recommend that anyone with an Ulcerative Colitis diagnosis try some empiracle testing- striclty remove all wheat and gluten products-including spelt and oats- and take some acidophilous. twenty something years in remission is proof enough for men, good luck
Re: Gluten intolerance and Pain: from yoon on 2010-05-10
Scott and Brenda
I don't have the answers but share the problem of joint pain which has become noticeable since going on the gluten free diet (diagnosed for about 3 months now). It also paticularly affects my fingers and wrist as well as knees. Frequent feeling cold in my knees too. There is a link between celiac and rheumatoid arthritis but I'm hoping its not that. Maybe just a withdrawal symptom to the gluten free diet? I'm supplementing zinc, magnesium and calcium at the moment as I don't seem to have enough calcium in my diet - still get reactions to milk/cheese etc so I think intestinal villi not recovered enough yet.
Re Gluten Intolerance and Ulcerative Colitis: from barbara perryman on 2010-07-12
dear P.S.D., first of all you have my sympathy. I am 57 yrs old, and have had UC for more than 3 yrs, and it is the most devistating thing that has ever happened to me. I am now going on a Gluten Free diet hoping that it will give me some relief from this horrid disease. When I am having a flare up, I eat a lot of mashed potatoes, and baby rice cereal with banana. On line you can find seveal Low Residue Diets, which can help too. I use wet heat with a towel on my tummy to help with the pain, but the prednisone, and mercaptopurine seem to help end the flare up. I am on 9 Colozal a day for maintenance too. I am hoping that new research will come soon to really give us some hope. Join the CCFA as soon as possile. They have a lot of information for young people like yourself. Best to you.
Gluten Intolerance and Ulcerative Colitis: from Elle MacCallister on 2010-07-16
Two years ago I met a wonderful man with ulcerative colitis. He was on seven medications when we met.
I had recently been diagnosed with Meniere's Disease (inner ear, I have issues eliminating sodium from my body). During the diagnosis phase before I knew what I had, I began a series of diets to determine whether my problems were food/food allergy related. As a result of all the various food eliminations, and reading the labels on all the foods I was eating, I became very aware of the types of nutrients and chemicals I was putting in my body. I eat only complex carbohydrates, and almost no processed food. I try to limit my dairy to one or two servings per day. I also eat a large amount of raw and gently steamed fruits and vegetables. I get my protein and omega3s/6s from Hemp Protien Powder and fish and some chicken with a very rare addition of red meat.
The reason I spilled all that about me is that as our relationship progressed, he began to eat more like I do. We recently moved in together and I do all the shopping and almost all the cooking. He has only had one flare up since we started living together and thats the second one since we've met. According to him they've not only reduced in frequency, but also in length and severity. He is no longer on predisone or the other immuno suppressers and steroids he used to take. He takes calcium, a multi vitamin and fish oil, along with 3 other medications in the morning, which are folic acid, perscription strength omeprazole (150-200mg), and sulfasalazine. His last colonoscopy, the MD said that on a scale of one to ten, one being the least severe and ten being the most severe, the disease ranked a 2. The previous year the disease ranked a 7.
Before we started seeing each other and moved in together his diet consisted largely of cheese, simple carbohydrates like flour tortillas and bread, and large amounts of other dairy products and fast food.
I know it's just anecdotal evidence, and what has worked for us may not necessarily work for you, but it may help which is the reason I'm throwing it out here, into the void of the internet.
Gluten Intolerance and Ulcerative Colitis: from Jo on 2010-08-21
I am a 27-year old male and was diagnosed with indeterminate colitis last year. On first presentation I had sub-total colectomy, and now have an ileostomy. I am currently still experiencing inflammation of the remaining part of the colon and rectum despite them not being used for any digestive function, and am wondering if some kind of allergy or food sensitivity may have caused or exacerbated the original problem and may now still be having a negative effect. Does anyone know if altering diet would have any effect on the inflammation in the rectum and remaining colon despite it not having any remaining digestive function? It now seems likely that I will have to have the remaining colon and rectum removed (unless a definite diagnosis of ulcerative colitis can be made), but I would also like to know whether reducing the inflammation would make it more likely that I could instead have an ileopouch creation, or could reduce the chances of developing Crohn's. Can anyone help
Gluten Intolerance and Ulcerative Colitis: from Peter on 2010-08-21
Have you been properly tested for the coeliac condition or for any other adverse reactions to food? It is important that these are done before you change your diet.
It is definitely possible for gluten in the diet to cause this inflammation even when no food is present - and can also cause inflammation of joints, skin, nervous system.
Tests first, then try a completely gluten-free diet whatever the results of the tests. Also note that soya can produce similar symptoms, more rarely dairy or other foods
Re: Gluten Intolerance and Ulcerative Colitis: from Rick on 2010-11-28
26 y.o. male w/ U.C., was diagnosed at 20 y.o., Rx'ed Asacol, had pancreatitis at 22 (Dr. accused me of being an alcoholic - bad times). I went on an elimination diet, and found that if I avoid gluten, dairy, and nuts I can manage the disease with diet and exercise alone. Not only is the U.C. a non-issue, but I am digesting much better without these trigger foods. I wholeheartedly recommend trying an elimination diet.
Re: Gluten intolerance and Pain: from Bernie on 2011-01-14
I have been gluten free (not strictly ) for about a year. Happened across a book which said that symptoms could be from gluten intolerance. Currently I am waiting on a biopsy in 6 weeks to check for celiac. I have been eating gluten for about a week in prep for this test.
My joints in hands are sore and quite swollen. Certain times of the day I seem to have a hypoglycemic reaction and I need to take milk. I just ate bread about 1.5hr ago, with tuna and tomato and now I am getting tingly face, numbness, speech slurr, and dizzy, where if I dont have small glass of milk I will go into a passed out type state, but am still awake and aware what is going on but cant move. It is quite extreme and will seem to happen daily. This seems to stop when I am gluten free?
The joint pain which is a lot in my fingers, but also in general, the body feels general ache and pain as well. I am unsure what I will do if the biopsy comes back negative, but may go to a dietician to help me try gluten free diet strictly to see what happens.
My questions are: will the joint pain go away if on strict gluten free (if I am intolerant), has anyone else had this hypoglycemic reaction? (someone has commented that they go tingly and numb in their arms and legs. I get this also, which I feel like I am going paralysed. I have collapsed at work at times and had to get taken to hospital in ambulance. Hoping to answers soon
Re: Gluten intolerance and Pain: from Peter on 2011-01-14
Your symptoms do seem to be quite a severe allergic reaction. Even if this is not a coeliac case, you still need urgent medical advice on how to tackle this problem.
There are cases in the literature where all the symptoms that you describe are caused by a reaction to wheat gluten, and clear up completely on a gluten-free diet. However this syndrome is very uncommon. Please do update this thread when you have results to report. Thanks
Re: Gluten Intolerance and Ulcerative Colitis: from JAMILA on 2011-04-02
i was searching for ulcerative colitis caused by allergies,this web page came up. My 7 year old was diagnosed nearly 2 years ago,but recentley after a colonoscopy and endoscopy, showed inflamation to the gut. At the moment my 7 year old is on prednisolone and pentasa,you have mentioned pentasa caused you side effects to the liver. Was it pancreatitis? my daughter is on 250mg 3x, i would appreaciate any advice. Kind Regards