357.Gluten intolerance Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 15

Re: Gluten Intolerance and Ulcerative Colitis: from Anita on 2011-06-08

Wow!!! It is definitely no coincidence that I found this forum!! I think of it as Godincidence! My 14-yr old daughter was diagnosed with UC when she was 9 yrs old. After being on meds which we tapered off of over the course of four years, then down to nothing, she had a flare up about 7 months ago that landed her in the hospital three times since. It got so bad this January that she was hospitalized for 11 days with "treatments" that included: oral meds (anti-inflammatory), IV meds (sterroids and antibiotics), medicated enemas, a blood transfusion-due to severe low blood count, a pic line to receive nutrition, a low-residue diet. She was so weak, dehydrated and practically lifeless (except for her bowel) that she needed a bedside commode. After realizing the meds were not working, she had a colonoscopy and EGD only to discover the severity would require Remicade treatments every two months for about a year or removal of the affected area of the colon. What do you think we chose? The treatments of course!! To say the least, I am happy the treatment seems to be effective, but my mind (as her mother--not her doctor) never rests...I worry about the possible side effects of all this and will not rest until I have more answers.



Now, with all that being said, in the course of all of this and through much prayer, I have been researching natural remedies, including better (greener) supplements and vitamins and minerals. I have had numerous friends encourage me to look into the whole "gluten-free" diet and try it. But with all the chaos of her illness and so many people offering their advice--some who have no idea--we have been trying to get her to a "stable" point so we can think clearly about all of it. I have recently taken her to a homeopath (also an RN) who suggested the gluten-free diet and better nutritional supplements. After reading all of your posts, you have convinced me that it is definitely worth a shot--to give her her life back!!



Since most doctors are not suggesting this themselves, they have no idea! I truly had no idea and was skeptical until I came upon this forum and found the "clinical" results you all posted to be ultimately promising!!! We should all print (if this is legal) the comments (your clinical results) and hand a copy over to doctors overseeing our care. They need to hear (read) all of the positive results from so many for them to get on board with this!!! This cumulative review of so many people, from many walks of life, from different countries and various associated illnesses should raise their eyebrows and open their minds for sure!!!



I just want to say thanks to all of you for sharing your problems, your concerns and your encouragement. Please pray that I can help my daughter make this diet transition go smoothly for her. I can't wait to let her read this forum; I cannot say thank you enough! Keep spreading the word about your successes!! Best of luck to you

Gluten Intolerance and Ulcerative Colitis: from val on 2011-06-25

I had extremely bad UC for two years that no medication seemed to help, nor did remicade, nor steroids. I had a colectomy and then the reversal to a j-pouch last year. I have now had severe pouchitis three times in 5 months. I began a gluten free diet 2 weeks ago and am now also removing all dairy and high fructose corn syrup. So far I haven't noticed any difference, but I also currently have a flare-up of severe pouchitis that my dr just gave me an antibiotic for.



My question is to anyone who has a j-pouch, how normal can i expect my bm's to get if this diet works and food is the culprit. Can I expect to return to normal bm's like I had before I developed UC? Any idea how long I need to give this diet to tell if it is going to work? I've heard anything from 3 weeks to 3 months.



Thank you in advance for any advise you can give me

Re: Gluten Intolerance and Ulcerative Colitis: from Tiff on 2011-06-26

I was diagnosed with UC 17 years ago and has been on Asacol for a out 16 years until I started a GF diet. It has eliminated my UC symptoms and has improved my condition! My doctor still believes I do have UC but with the help of GF diet, it is well controlled until I eat gluten or dairy which seems to go hand in hand. I have had a few flare ups due to eating gluten and dairy and the only way together back to norm is taking my UC meds. I would then wean off once symptoms are gone. Since I seem to flare easily because of party foods and eating at restaurants. Flare ups have been very often. Now I just take 4 tabs of Asacol instead of 12 for maintenance, otherwise I have no wiggle room. I buy some of my snacks from Trader Joes or Whole Foods. I drink soy milk with Chex GF cereal for breakfast. Costco also has a variety of GF chips. It's not as hard as you think. It forces you to eat better! Good luck. Your condition WILL improve with this diet and dairy free as well.

Tiff

Re Gluten intolerance and Pain: from Kris on 2011-07-06

I heard that Europe and UK use Wheat-based Glucose syrup in their candy. Bounty bars have glucose syrup as their 3 ingredients. When I eat them they do a number on me. Just wondering if anyone else has this same reaction? Thanks

Re: Gluten Intolerance and Ulcerative Colitis: from Trudy on 2011-07-30

Hi - I've recently been diagnosed with Colitis - and have been a coeliac for approx 15 years - I was wondering whether there was any connection - it does seem like my insides don't like dealing with food, one way or another lol! I only came across this site as I was looking for info regarding gf fish and chips in Newquay as we are going on holiday at the end of August - any info appreciated

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2011-07-30

I don't think that there is any doubt that some cases of ulcerative colitis are caused by gluten or wheat in the diet.
But it is not the only cause.
People who react to gluten or wheat also seem to have a higher rate of adverse reactions to other foods as well.
So ulcerative colitis might be cause by other foods you are eating even though you are on a gluten-free diet.
Try and eat as varied a diet as possible, keep processed foods to the minimum, keep a diary of what you eat and any symptoms, and you might be able to spot a connection

Re: Gluten Intolerance and Ulcerative Colitis: from Terry on 2012-01-06

I suffered 4over25yrs w crohns colitis diverticulitis no one in the medical community discussed celiac w me. My gastro dr told me it has nothing to do w diet. I went gluten free 5 months ago and I'm a new woman. I don't need to know where the bathrooms are. I'm not bleeding anymore no more diareah it's gone. It's over!!! I think I had depression also but that lifted as well probably because now I'm normal. Finally!!! The bleeding stopped