358.Gluten intolerance Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 3

Re: Does anyone know of UK Gluten intolerance testing: from Peter on 2003-05-13

The only effective test is free, via your own NHS Doctor.
But don't start a gluten-free diet before the test. It won't work after.

Peter

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-03-22

Hi My son has ulcerative colitis, I worked out it was gluten because my other son and myself was having other problems due to a gluten intolerance. He is better now (hopefully) because of his gluten free diet. The site that will help you most on the net is celiac.comwith cooking recipesand research). It's wonderful. It states that you can have negative blood test for celiac disease but still have symptoms. Read Dr. Fines research gluten intolerance. The blood test do not go postive until it has damaged the whole gut and gets into the blood stream then you are very sick with liver, throid, etc wrong with you

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-04-03

Hello all. I am a 27-year old, otherwise perfectly healthy female with Ulcerative Colitis. I do not like to take daily meds, besides vitamins, thus I attempt to control my symptoms through diet. As you noted, Peter, restrictive diets are not wise nor enjoyable, but I am convinced that some items must be removed from the normal diet of one living with UC. For example, popcorn sends me into abdominal and gastrointestinal fits, as do hard nuts and seeds. I have yet to find a way to include any of the aforementioned, even in moderation. I have also noted an intolerance to raisins, corn, and other foods with an insoluble skin. Jam sounds lovely, as long as it does not inlcude berry seeds. My doctor insists that I should be able to eat whatever I like during periods of remission, but I have found that including the "taboo" items above have brought me out of the remission in which I so desperately want to stay. The recommended medication is ASACOL, by means of 3 pills, 3 times per day. Not the end of the world I suppose, but I am looking for a stable, practical, medication-free answer to this pesky disease. Any thoughts

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-04-10

hi, i'm 20years of age and have been suffering with ulcerative colitis for the past six years, i stopped my hospital medication about two years into my illness as the tablets i was taking(mesalazine) gave side effects with damaged my liver. i took a alternative root and tried herbal medication(which is not recommended unless the Dr is fully qualified with a British medical board) however, this has helpped me and as well as my UC my liver is also recovering.For the first time in nearly six years i have not felt better. I thought that this may help you try to find a alternative to ascol because i was also on three tablets three times a day as well as six prednisilone and a enema. Hope this has helpped you. good luck

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-04-10

hi, i'm 20years of age and have been suffering with ulcerative colitis for the past six years, i stopped my hospital medication about two years into my illness as the tablets i was taking(mesalazine) gave side effects with damaged my liver. i took a alternative root and tried herbal medication(which is not recommended unless the Dr is fully qualified with a British medical board) however, this has helpped me and as well as my UC my liver is also recovering.For the first time in nearly six years i have not felt better. I thought that this may help you try to find a alternative to ascol because i was also on three tablets three times a day as well as six prednisilone and a enema. Hope this has helpped you. good luck

Re: Gluten intolerance and Pain: from on 2004-10-07

how the hell do i loose weight..i am 183lbs at 5 7 and i look like a porky

Re: Gluten intolerance and Pain: from on 2004-10-09

Hi to you in this forum.
I recognized some of your story Sue, also having a belief during the last few months about being gluten intolerant. For many years I have had suspicions about bread and wheat in particular not being the best thing for me, but ignored my observations. I have had severe asthma bronchitis for 30 years now (I am 45), and it started with very itchy blisters/hives. Still I often get those small blisters that are watery and very itchy. My bowl easily becomes irritated and I am frequently constipated. Irritations are also a common psychological condition for me, especially when feeling allergic and when there is this "burning" feeling of all of my skin. There are also some small areas of eczema. I have used terms like a general immune condition to describe what is happening. My arms and legs have from time to time numb and tingling. Although not severe it is sometimes like there is something wrong with my coordination or balance when I rise from bed or a chair. I do not know if that is a symptom of gluten intolerance or not, please tell me if any of you have information about it. I became slightly overweight a few years ago while also developing depression, fatigue and hypertension. Problems of concentration are not unfamiliar either.

The long list with symptoms have been attributed (by me) to other problems as candida albicans syndrome and lactose intolerance since my health have deteriorated when consuming milk and diary products. Today my diet is lactose free and I have learned a lot about boosting my immune system by curing yeasts. I cannot eat much salt, white sugar or drink coffee or alcohol because it troubles my health too much. Even though I do stick to this restricted diet and lifestyle (no tobacco, no perfumes) there are problems. This summer I changed my diet to ovo-vegetarian and after a few weeks the digestion got somewhat better, but not good. I had to continue my journey and have now stared on a gluten-lactose free ovo-vegetarian diet. It had immediate effects on digestion for the better.

I went on the Internet to pick up information about gluten intolerance and learned that some of my problems may be caused by mineral and vitamin deficiency as for instance iron, magnesium. Deficiency for Magnesium seems to fit the picture especially well. I will continue to stay on this diet for a few more months, take magnesium supplements and see what happens. And then I can try to reintroduce lactose if it works, and then probably some fish.

It is a lonely journey with these experimentations I go through to get a better life. I have learned much new stuff, but it is stunning that none of the medical personnel or docs (not even the specialists in asthma and allergies) never cared to mention that lactose, yeast, gluten or mineral/vitamin deficiencies may be factors to take into consideration as a part of the treatment. There has never been a single word about it, not even in one of many stays in hospitals for treating asthma or when taking some of many allergy tests.The lesson have been a hard one to pick up since I relied on and trusted the treatment I got with anti-histamines, Ventoline, cortisone/Predinson and antibiotics. etc. It really took a lot of suffering to come where I am today, and hopefully I will come even closer to good health.

Best regards from AT

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-11-03

Hi I'm a guy of 27 and have been suffering from Ulcerative Colitis for around 10 years now as well as Arthritis, osteoperosis (thanks to all the Prednisalone) and ankelosing spongelitis, I have recently had a real bad flare up and am on the 6 prednisalone, predfoam enamas and other such wonderfully harmfull drugs and have had enough.
Does anyone know of any websites that have a list of useful food infomation as in what to avoid and what to not. I realize a lot of cases are different but their must be some foods that are a real no no and some that are beneficial. Does anyone have any info on wether the friendly bacteria drinks have any use or not. I'm at my wits end. Oh and I apologise for the lousy spelling.

Thanks

Andy

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-11-17

My daughter has a gluten intolerance. She has has the blood test for coeliac disease but it came back negative. As she refuses to have a biopsy done so we cannot go any further medically.

We decided to go on an elimination diet and discovered that any thing containing wheat or gluten would have her rolling on the floor with pain throughout her whole body.

She can tolerate about 30g of oats a day for breakfast but we have to make sure that there are no other traces of wheat or gluten in her diet. This becomes very hard in restaurants and cafes.

I have had to learn how to cook without gluten and have found that dove farm plain flour is one of my main larder products.

I feel that in her case switching her to a gluten free diet has given her a quality of life back.

After reading you e'mail i am now wondering if the small amount of oats each day could still be doing her harm

Re: Gluten Intolerance and Ulcerative Colitis: from on 2004-11-30

im 24 yrs old have had ulcerative colitis for 1 year. ive been on the steroids and now none of my medicaton works. i dont know what the next step is to do. i need some help with what to eat every day and dont know what helps. if there is anyone who can help then please feel free to reply, im desprate.

thanks

Richard