363.Gluten intolerance Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 8

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2007-04-24

There are two main tests. Tissue transglutaminase test and endomysial antibody test for diagnosis of coeliac disease and gluten intollerance..

The endomysial antibody test is regarded as the most accurate. Often both are performed.

Re: Gluten Intolerance and Ulcerative Colitis: from Melinda on 2007-04-24

Got all the coeliac blood testing back.. negative... lactose intolerance, negative.

All regular bloodwork, healty... in the middle of 72 hours stool tests.(done while eating with wreckless abandon) are the stool ones more accurate? seems that is the case from something I read. I am being told, so far now by 2 docs (at a US top 100 hospital) that there is no reason I should not eat gluten. Told that the pain and Dia... must be something else. do alot of people just do this without any support from a Dr.?

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2007-04-24

If the symptoms are very clear: gluten=problems
no gluten= no problems, then many people will make up their own minds.

But take care. If symptoms are not clear cut then you may be kidding yourself, suffering from stress induced symptoms, or masking other problems such as developing cancer.

Re: Does anyone know of UK Gluten intolerance testing: from Kate on 2007-04-25

I just want to say I feel for you. I was diagnosed with coeliac only last November after having been really ill for 5 years. Two consultant doctors had told me that I had IBS, I had had blood tests done for coeliac, but these had come back negative. I changed to another doctor in the practice and as she had a friend who suffers from coeliac she was much more aware of the disease and I was sent for an endoscopy and had biopsies taken which showed that I was suffering from coeliac.



I agree that I too was treated very well once a diagnosis was made. The funny thing was though after the endoscopy at the hospital they wanted me to eat something before discharging me, and all they had to give me was a sandwich. (The doctor could see immediately that I had coeliac although biopsies were taken and confirmed the diagnosis.)

Re: Gluten Intolerance and Ulcerative Colitis: from Adrian Hobbs on 2007-05-02

One of the problems with oats (and maybe rye as well) is that it isn't generally pure. The places it grows often have a fair sprinking of other plants mixed in with it. This can include wheat carried in from neighbouring fields or carried over from a crops in previous years. Unfortunately they all get picked up in the harvesting process.



This means your average oats serving can have a small amount of gluten from wheat mixed in with it (up to 10\% I saw reported in one study). I suspect this is why one is limited to how much oats (and rye) can be eaten before symptoms appear.

Adrian

Re: Gluten Intolerance and Ulcerative Colitis: from Kelly on 2007-06-09

Amazing posts here! I was diagnosed with UC over five years ago. It has been horrendous ride, let me tell you. It wasn't until discovering that my daughter is intolerant to wheat and then that my son is intolerant to gluten that I finally realized that I was having the same problems. My son and I have both had gluten sensitivity testing done and both tests yielded negative results, yet, it is painfully obvious that both of us react terribly to gluten. This is the first spring since my diagnosis that I have been completely flare free. If I ever slip up and get any warning symptoms I have found, by scouring the Homeopathic Materia Medica, that using Mercurius Solubuis 30c will stop things from progressing at all. And to think that it was only this past March that the top doc in the US working with women and IBD at the University of Chicago told me that my only option now would be to have surgery. HA! I wish I could scream this from the rooftops to help all of the others out there suffering from this miserable disease.



I highly recommend at least testing this out. You have nothing to lose, only gain. Best wishes to all.

Re: Gluten Intolerance and Ulcerative Colitis: from Nancy on 2007-06-15

I have been diagnosed with UC for two years (30 years old now), but I think I have had it my whole life to some degree or another. I was put on Asacol by my doctor, which ended up giving me pancreatitus. The doctor said she had three other young females with the same reaction. . . so I thought it would be worth noting here.

Re: Gluten intolerance and Pain: from Kristin on 2007-07-10

Hi-

Im 15 years old and I have severe joint pain and have been through alot.

I had a ligament repair surgery a year ago, broken/fractured bones and much more. I also have had a lot of ankle problems i dont know if i could be allergic to wheat gluten i cant figure it out. My doctor originally diagnosed my wrist pain as growing pains but then 6-7 months later it ball ended up as two torn ligaments. I am still having pain all the time and i would like to figure out whats causing all of the pain!

Re: Gluten intolerance and severe joint pain: from Peter on 2007-07-10

A gluten intolerance can cause severe joint pain, and the associated malnutrition from not absorbing nutrients from food can result in weak bones and low bone density.
It is one possibility that your doctor should be investigating, but there are many other possible causes.

Re: Gluten Intolerance and Ulcerative Colitis: from nanette proctor on 2007-09-29

br> I have had problems eating all my life, My grandma called me at 30 years old

and told me I may have celiacs she was worried about me she die afew year before i was sure I had it. but now my sister michelle may have it.

Infact Michelle told me what it was and saved my life. I can't have gluten,

milk products or eggs. I break out in hives and feel like someone is wringing

out my insides. My grandma had it what are our chances number wise.

I have 14 brothers and sisters. And We were raised far away from our

grandma, a really neat red head Irish lady with freakles. Nan