387.Gluten Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 22

Re Gluten Intolerance and Ulcerative Colitis: from Peter on 2006-04-11

You are not the only one with this experience.

My symptoms were so bad they decided on an internal investigation. Put me on water only for three days before hand. By the time they were ready for the anaesthetic all the symptoms had gone and I hadn't felt as fit for years and years!

The hard bit was then working out what actually caused the symptoms. It got labelled as Coeliac, but I was convinced it wasn't quite the whole story. Any finely powdered food could trigger the symptoms again. e.g.Whole rice is OK, but fine rice flour is not. I stick to a gluten-free diet, but without any sort of flour, so fruit, veg, meat, fish and I stay completely free of symptoms.

Excellent!

Peter

Re Wheatfree = Gluten Free: from Lonna on 2006-04-15

I suffered from endometriosis all of my adult life.....having had two surgies and no cure in sight.....I lived with the pain as it always was re-occuring. I was ready for surgery again as the pain was getting worse and my moods and lack of sleeping were just as bad. I also had bad break outs on my face, nape of my neck, and back. I met a man that told me to cut out wheat, gluten, dairy, grains, corn of any kind and sugar. This was hard as you can imagine...but once I got through the withdrawls and bad habits.....For three years I have been pain and symptom free, clear beautiful skin, I sleep and no more gas and diareah. Trust me....food is the culprit of all our problems. Good luck.

Gluten free and casein free diet for autistic child: from Emily Print on 2006-04-29

Please see

http://coeliac.info/suppboard/viewtopic.php?t=91

Re UK Gluten Free Beer: from Emily Print on 2006-04-29

The French lager on ASDA GF list is a mistake- Coeliac UK say no ordinary beer is safe for coeliacs, only the special GF ones.

Stick to the GF beers (as named on CAMRA Chesterfield GF beer festival web site).

Gluten free diet after CD diagnosis: from Emily Print on 2006-04-29

Brenda, if you are in UK join Coeliac UK ( Coeliac Society) -membership is free to all diagnosed coeliacs in UK- and look/post on the gluten free messageboard .

http://www.coeliac.co.uk/

http://members2.boardhost.com/glutenfree/

If you are outside UK join your local Coeliac Society as you will need help in staying strictly gluten free.

In EU now all ingredients on processed food & drink have to be stated- which helps people with CD.






epilepsy, seizures and gluten: from Andrea Sorrentino on 2006-05-02

I have never posted any kind of comment on any site as well like Susan--but I feel it is so important to let others know what we have experienced with our 5 yr. old daughter. She was diagnosed with epileptic petit mal seizures in 10/05 and we have started her on a gluten free and casein free diet since Feb 2006. We have seen dramatic decreases in her seizures and are so encouraged to continue to keep her on this diet and are beleiving in a total healing from her seizures. (We never put her any medicine). There are so many gluten free foods and products if you have a natural food store in your area which is very helpful when you son Andrew starts finger foods. Fruits and vegetables are great! The website feingold.org is a great website to get info even though it states its purposes for helping ADHD and Autism and if you put in gluten free casein free diet in your search engine--so many great websites are there for help and products you can order on line. We have been so blessed by so many people that have given us info that helped us reach this point. I will be praying for your son Andrew.

Re UK Gluten Free Beer: from Paul on 2006-05-05

Greens ale tastes like stale dishwater to me!

However many coeliacs report being able to tolerate certain lagers, depending on quantity. Corona is often mentioned as OK, and I find I can tolerate it. Brahma is ok for me personally as long as no more than 4 bottles, Cobra Ok in 1 or 2 bottle quantities.

The absolute no-no is any beer containing wheat, since most of us seem to have a higher intolerence to wheat gluten. Therefore wheat or white beers are toxic! Also they are cloudy from deliberate wheat content!

It is a matter of debate of course as to whether we should risk low levels of gluten at all - and whether we can get away with some glutens better than others, e.g. oats rather than wheat. Research indicates we vary in this regard with some coiliacs able to tolerate oats and spelt, others having problems with even the rice varient of gluten (rice starch). I seem to be able to tolerate small amounts of barley gluten in beer and oat gluten in one particular "oat" ale. In food the levels are too high and make me ill. I guess its a careful try it and see, but please dont make yourselves ill on my suggestions!

I will not pretend to be an expert on this one or give medical advice, but perhaps the above will be of help to some people!

Incidentally in regard to Whisky - having done some research and corresponded with some experts including distillers the following might be helpful
Scottish whisky is either single malt or blended.
Blended whisky tends to contain wheat.
Blended whisky is more likely to have residual impurity, including wheat gluten.
Single malt contains only barley as a source and is always at least double distilled. Some are triple distilled (mainly low land).
In theory blended whisky is risky, single malt should be OK, and Laphroig in particular are adament their product is gluten free.
This only applies to Scottish Whisky, I have no info regarding Irish or US/Canadian

As a whisky buff and enthusiast, I have noticed blended makes me ill, single malt just makes me happy! So the information I gathered seems to be pretty accurate.

Regards
Prof Paul Morgan-Ayres
Consultant Therapist

Re Gluten and sugar free baking: from Jane on 2006-05-08

Hi, I too am interested in gluten and sugar free baking. I went to your website
http://fhill11.tripod.com but couldn't figure out how to respond to you and your project-club. I definitely want to learn more. Hope to hear from you soon. Jane

Re What you can eat on a gluten-free diet: from Madelon Lawrence on 2006-05-18

I have found some wonderful Gluten Free foods at Waitrose. I have had the joy of eating bakewell tarts, jam tarts etc. I am fortunate that I get my Guten Free bread on prescription from my doctor and as I am of a 'certain age' my prescriptions are free. My appetite was poor and I lost so much weight before I was diagnosed, now I eat well, have put on weight, a little too much, and feel fantastic. Only thing is losing weight is hard, sugar free is not gluten free and most diet groups do not cater for coeliacs. Any ideas?

Re Obscure Foods not Gluten Free: from robert Cutler on 2006-05-19

Is malt flavoring gluten-free? Thanks, Robert Cutler

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