393.Gluten Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 28

Re Wheatfree = Gluten Free: from karen Jankavich on 2006-09-25

Did you get any responses for GF oatmeal? I am also looking for it and would be interested in finding who puts it out and where it can be purchased.

Re Gluten intolerance and Pain: from Diana Fernandez on 2006-09-28

Hi,
I have had several pain in my stomach during seven months, in the first month after conducting an endoscopy drs. have found the helicobacteria and it was eliminated with some antibiotics. After this happened new problems in my stomach and colon appeared, at that time I was having only fresh food and less processed food, drs. told me it could be colitis so I had to change my diet for bread, rice, and pasta -among others-, one week later after having changed my diet pains in my joints, bones in hands, knees, and feet appeared to the point I could barely walk and type, since two months the situation hasn't changed that much, drs. took to the hospital and conducted all kinds of tests but they haven't found anything so far, at this point and with the several change of my diet I am wondering if this could be related to gluten intolerance, I appreciate any advice. Thanks

Re Gluten intolerance and Pain: from Peter on 2006-09-28

If your symptoms have got very much worse after increasing the amount of bread and pasta in your diet, then there is a possibility that the symptoms that you describe could be caused by the gluten in the diet. This is not always apparent from an endoscopy.

It would do no harm to try a completely gluten-free diet for a couple of months.
Since you are at present discussing your medical problems with your doctor it would be wise to discuss this with your doctor.

The intense course of antibiotics needed to eliminate helicobacter can also trigger latent intolerances to become apparent.

Re What you can eat on a gluten-free diet: from Sharley on 2006-10-04

Can you eat anything that has "soy" in it?

epilepsy, seizures and gluten: from Karen Frieman on 2006-10-13

I am so happy to see Andrea's above email (if you see this, please email me!) My son, Sam is 3 years old he had had frequent vomiting on and off for 2 years and was recently diagnosed with eosiniphilic esophagitis and has been going through extensive allergy testing.
About 1 month ago he began having petit-mal seizures and was diagnosed with childhood Absence Epilepsy by EEG. All of our Dr's are at CHOP(Children's Hospital of Philadelphia) and have been trying to convince us that there is no link between the 2.
Today our allergist just recomended starting a wheat, oat, soy and dairy free diet.
I am very intetrested in any additional feedback anyone can offer.

Thank you!
Karen

epilepsy, seizures and gluten: from Peter on 2006-10-13

Papaer from medical literature

Pratesi R ; Modelli IC ; Martins RC ; Almeida PL ; Gandolfi L
Affiliation Department of Pediatric Neurology, Brasilia University Hospital, University of Brasilia, Brasilia DF, Brazil. riccardoop -at- abordo.com.br
Title Celiac disease and epilepsy favorable outcome in a child with difficult to control seizures.
Source Acta neurologica Scandinavica. (Acta Neurol Scand) 2003 Oct; 108(4) 290-3
Additional Info Denmark
Standard No ISSN 0001-6314 (Print); 1600-0404 (Electronic); NLM Unique Journal Identifier 0370336
Language English
Abstract We report the case of a child with difficulties to control epilepsy and celiac disease, diagnosed soon after the onset of the seizure disorder. Seizure frequency and pattern, in addition to electroencephalogram record were suggestive of Lennox-Gastaut syndrome. Diagnosis of celiac disease was determined by positive anti-endomysium and anti-transglutaminase tests, and abnormal jejunal biopsy. Gluten-free diet, started soon after the diagnosis, led to progressive seizure control, allowing significant decrease in dosage of anti-epileptic drugs. This case corroborates the importance of serological screening tests for celiac disease, at least in patients with difficult to control epilepsy.

epilepsy, seizures and gluten: from Peter on 2006-10-13

Another paper from medical literature

Mavroudi A ; Karatza E ; Papastavrou T ; Panteliadis C ; Spiroglou K
Affiliation Department of Pediatrics, 3rd Pediatric Clinic, Division of Digestive Diseases, Aristotle University of Thessaloniki, Hippokration Hospital, Thessaloniki, Greece.
Title Successful treatment of epilepsy and celiac disease with a gluten-free diet.
Source Pediatric neurology. (Pediatr Neurol) 2005 Oct; 33(4) 292-5
Additional Info United States
Standard No ISSN 0887-8994 (Print); NLM Unique Journal Identifier 8508183
Language English
Abstract Celiac disease is a gluten-sensitive enteropathy, which recently has been described in association with epilepsy or other neurologic disturbances. This study describes a case of a 7-year-old female with intractable-to-treatment epilepsy and late-onset celiac disease, who was treated successfully with a gluten-free diet plus antiepileptic therapy. It is important for children with intractable cases of epilepsy and weight loss to undergo screening for celiac disease.

epilepsy, seizures and gluten: from Peter on 2006-10-13

Third paper from medical literature

Vaknin A ; Eliakim R ; Ackerman Z ; Steiner I
Affiliation Department of Neurology, Hadassah University Hospital, Jerusalem, Israel.
Title Neurological abnormalities associated with celiac disease.
Source Journal of neurology. (J Neurol) 2004 Nov; 251(11) 1393-7
Additional Info Germany
Standard No ISSN 0340-5354 (Print); NLM Unique Journal Identifier 0423161
Language English
Abstract BACKGROUND Celiac disease (CD) is a gluten-sensitive enteropathy in genetically susceptible individuals. Anecdotal reports suggest that the nervous system might be affected in the disorder, but the severity and prevalence of such an involvement have not been systematically evaluated. MATERIALS AND METHODS Analysis of files of CD patients diagnosed between 1980 and 1999 for neurological abnormalities. Diagnosis of CD was based on the modified criteria of the European Society for Pediatric Gastroenterology and Nutrition. RESULTS Of 148 CD patients, 18 (12\%) had 21 neurological disorders that could not be attributed to any other condition including muscle abnormality (3), epilepsy (3), psychiatric disease (4), peripheral neuropathy (3), cerebrovascular disease (1), myelopathy (1) and Down syndrome (2). Other disorders probably unrelated to CD were present in 8 patients. CONCLUSION If this association is not coincidental, both the central and the peripheral nervous systems may be affected in CD by a spectrum of neurological disorders that are either the outcome of CD or share the same pathogenesis with the enteropathy.

Gluten: from Peter on 2006-10-26

Gluten is a protein found in the grains wheat, barley and rye.
It gives the dough of these flours their elasticity and good baking qualities.

Some people have strong adverse or allergic reactions to gluten and must avoid it in their diet.

Gluten free suet: from John Chapman on 2006-11-05

My grandson who suffers with coeliac disease is visiting us at Christmas. Can anybody please help my wife souce Gluten Free Suet.