401.Gluten Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 32

gluten gene: from Sandi on 2007-02-23

I have been diagnosed as having the gluten gene. Besides avoiding foods with gluten, do I need to avoid any foods made from machinery which may have wheat on them, also toasters, toothpastes, etc.

Also, is it normal to feel worse before feeling better after cutting out gluten?


gluten gene: from Peter on 2007-02-23

You need to avoid food made where there is a possibility of heavy contamination, for example a flour mill which uses the same grinding equipment for gluten-free flours and gluten containing flour will produce heavy contamination shortly after changing from one to the other. You will see gluten-free flour advertised as being produced on dedicated gluten-free production lines.

Some products, although they don't have any gluten listed in the ingredients, have flour or crushed wafer on the production belts to prevent the product sticking, so this is not gluten-free. These products are best avoided.

In the home, you need to take reasonable steps to minimise contamination. I react badly to flour dust in the air if someone is baking with a fine wheat flour, and I won't eat something that has been cooked alongside a food containing wheat flour. But as long as the toaster is visibly clean, then I don't find it a problem. many people do use separate toasters.

To start with you can have serious withdrawal symptoms when you cut out wheat, and many people find they crave wheat or bread - it is just like giving up smoking or coffee. Stick with it and you will be fine.

Re: Wheatfree = Gluten Free: from desiree on 2007-02-25

don't feed your daughter wheat or gluten. If you can, shop at Whole Foods, they have a great selection of gluten free cereals, gluten free pasta, etc. You can also shop on line for gluten free foods by doing a search for gluten free food in google.com

Good luck, she will feel better when she doesn't eat wheat or gluten.

Re: gluten and clinical depression: from lark on 2007-02-27

I have celiac disease (diagnosed 4 years ago) and have not been perfect with the gluten free diet. I have suffered from depression for over 17 years and have now been pharmaceutically treated for 5 years. Does anyone else out there have major problems with sleep? I seem to have an unusual body clock. I need to sleep at least 10 hours, if not 12 or more, just to function. However then I'm up forever. It's as though I'm on a 36 hour cycle rather than a 24 hour cycle. This is driving both me and my husband nuts, not to mention it's rather anti-social. Any suggestions or similiar problems?

gluten free crisps: from kerry on 2007-02-28

can anyone help me,does anyone know what crisps are gluten free? as my son has to take a packet to school.thank you.

Re: UK Gluten Free Beer: from JUAN HERNANDEZ on 2007-03-06

how does uk gluten free beer compare to us gluten free beer?

Re: Gluten intolerance and Pain: from Emily Baxter on 2007-03-09

Hi, I work for the prescribing team in east kent, one of my GPs has asked if there are any hypertensive medications that do not have wheat or gluten used in the excipients available.

Re: Gluten Intolerance and Ulcerative Colitis: from Leila on 2007-03-12

Hi! I posted here some time ago, and was suffering quite badly with my uc, and started a gluten free diet as a last resort. I have now been virtually symptom free for five months, and been able to reduce some of my medication. I would definitely advocate being gluten free if you have uc, or at least give it a go and see if it makes any difference. I was ready to have surgery, but am going to see if I can avoid it by adhering to quite a strict diet. It is a big adjustment to make to begin with, but I remember being in and out of hospital with horrible pain, and feeling like I was about to die, and it is a small sacrifice to make. Good luck to all who try it!

Re: Gluten Intolerance and Ulcerative Colitis: from Peter on 2007-03-12

Excellent news Leila.
It makes running this message board worthwhile.
Thanks for letting us know.

Re: UK Gluten Free Beer: from donna stevenson on 2007-03-14

Can gf beer be purchased in the states?