403.Gluten Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 37

Re: Gluten Intolerance and Ulcerative Colitis: from Adrian Hobbs on 2007-05-02

One of the problems with oats (and maybe rye as well) is that it isn't generally pure. The places it grows often have a fair sprinking of other plants mixed in with it. This can include wheat carried in from neighbouring fields or carried over from a crops in previous years. Unfortunately they all get picked up in the harvesting process.



This means your average oats serving can have a small amount of gluten from wheat mixed in with it (up to 10\% I saw reported in one study). I suspect this is why one is limited to how much oats (and rye) can be eaten before symptoms appear.

Adrian

epilepsy, seizures and gluten: from June on 2007-05-03

I wish I had known about the possible link between wheat/dairy & epilepsy when our daughter(now 15) was younger. She had fits when she was born & then at school age developed night time epilepsy so was constantly tired during the day etc. Was put on a very high dose of Epilim for several years and has had to play 'catch up' with schooling ever since. I knew years ago that wheat could cause bloating etc, but never gave the epilepsy a thought. Hindsight is a wonderful thing!

However, on a positive note, said daughter is now doing really well at school, having been moved to one with v small class sizes.

If we could persuade the medical world to at least give us the opportunity to try the wheat free method for epilepsy, they could save millions of pounds and a lot of heartache from the incurred side effects.

Re: gluten free chappatti flour: from alina sheikh on 2007-05-09

Hi



Buckwheat flour is part of the rhubard family and has no no natural wheat, but in process can be contaminated, therefore you need to buy gluten free buckwheat flour. Mix buckwheat flour with gluten free white flour and mix with milk, but leave it quite thick. it should taste alot like chapatti.

epilepsy, seizures and gluten: from kay telford on 2007-05-13

My daughter who is now 22yrs was diagnosed with Benign Rolandic Seizures of Epilepsy in childhood when she was 9. She had never been ill until then and after being diagnosed had about another three seizures in the following 18 months. This type of epilepsy normally stops at puberty and no medication is required as it is a benign condition. She had no further problems until about 18 months ago when she was diagnosed with a rare neurological condition called palatal myclonus and blepharism which are related to distonia. With this the muscle at the back of her throat goes into spasm and you can hear a clicking noise all the time. In addition to this she had at times exacerbated blinking and involuntary movement of the tongue. There is no cure, but it is non life threatening and can be difficult to manage. We tried medication but this had no effect and eventually we attended an acupuncturist which had an amazing effect. She still has it, and it seems to get worse under stress, but she has now learned how to cope with it a lot better and it is not preventing her get on with her life.

We now have another issue to deal with; namely bouts of pain in the back and abdomen, followed by vomiting which has resulted in admission to hospital 5 times since January 2007. She has had an eating disorder for over ten yrs and admits her diet has been very poor and she has had periods of binge-eating, which may have contributed to her bowel becoming lazy and causing an obstruction. The distension in the stomach is however chronic and she appears to be about 9 months pregnant from the swelling. Even with her eating disorder, the x-rays she has had are as one of the drs observed, "unbelievable".

She is to have a colonoscopy tomorrow and a transit x-ray next week - a lot of her symptoms seem to indicate celiac disease and through the research I have done seems to indicate a connection with stress and neurological problems acting as a trigger to the condition.

I would welcome any feed back from this and will report on the test results when we get them.

epilepsy, seizures and gluten: from Peter on 2007-05-13

As you suggest, there is a possibility of a link to gluten / coeliac condition.
Your report back will be most useful.

Re: Gluten and sugar free baking: from David Uri on 2007-05-13

I am unable to eat gluten, wheat, sugar, dairy products an nuts for the time bieng.



can you advice of a good cook book or supplier fro such foods bothe in USA and UK.

epilepsy, seizures and gluten: from JACKIE on 2007-05-16

Further to my mention about our research on the Gluten diet we further established that there are a whole lot of other elements in food which are discreetly mentioned in food labels which are gluten based eg. gum, gelatinised starch etc.. As we are not enlisted to a qualified dietitian its worth being aware of these facts .

In addition there are other exotoxins which can lower epilepsy threshold eg. Exotoxins like Aspartame, sodium glutamate, aromotheraphy oils and some over the counter meds. These are readily available in every day foods, snacks and fruit drinks.



Please Look Out !!!!!.

Re: gluten and clinical depression: from Jody on 2007-05-23

Hi Caroline your little boys symtoms are very similar to mine and it is awful i feel so tiered, upset very cranky after accidently eating the wrong thing my symptoms of diaorrhea take three days to start i can feel it moving through my stomach the day before i feel awful , my sister and mother vomit within two hours or less , i really dont think peole realise the damage one piece of cake can do i really feel sorry for your lkittle boy his concentration would also be affected at school so really take note of all he is saying and how he feels because you honestly dont feel good at all and mine lasts a week almost in a depressive state its awful.

Jody

gluten free: from Mirie Jordaan on 2007-05-30

I would like to have some gluten free receipes aswell as a gluten free diet.

Can you help?

gluten free: from on 2007-05-30

You will find hundreds of tried and tested gluten-free recipes at this location:

http://www.peter-thomson.com/glutenfree/index.html