424.Gluten Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes part 53

Gluten Intolerance and Ulcerative Colitis: from Rich on 2009-09-01

I had UC for many years until I had to have my colon removed and now have a j pouch. About 2 years ago my pouch was diagnosed with moderate to severe pouchitis. I was on a course of antibiotics almost 2 weeks after I went off. Not wanting to get a bag, I went gluten and dairy free. Also, added SCD yogurt everyday. I found that I feel much better and hardly ever get irritation like I used to WHEN I stay on this program. The challenge is not eating off this program. There is a book about the SCD(specific carbohydrate diet). I found this to be too restrictive, so I just went gluten and dairy free. I also monitor how i react to foods.

I am convinced from personal experience that gluten 'sensitivity' is very real and effects physical as well as mental/emotional issues

Re: What you can eat on a gluten-free diet: from Dorthi on 2009-09-02

I dont' know about gluten but I know with my daughters wheat allergy she can't have Vinegar unlessit is the apple cider vinegar

Re: Gluten intolerance and severe joint pain: from beatrice on 2009-09-08

I am so happy you posted this.

I was diagnosed with all kind of arthritic diseases and prescribed all kind of heavy meds. A genius rheumi doctor from Russia thought of running a genetic test for celiac disease as all the blood tests I ran in 30 years were always negative. It was an overnight relief (per say, compare to the years of suffering) getting rid of debilitating joint paint as my diet went gluten free.

I wish more doctor were aware of the link, my life has turned around and I can now make plans again, work, skip naps, travel etc

Re: UK Gluten Free Beer: from Kevin Doyle on 2009-09-13

I have been drinking cider lately but it is no substitute for beer is it? Imagine my joy on tasting Hambletons GFL. I have never been a lager drinker and to describe this wonderful drink as lager does it a grave injustice. GFL reminds me of Deuchars IPA but it is slightly stronger. It is so tasty that I am sure that lager drinkers won't like it. Also, I have had the whole Greens range now and have been impressed but GFL has that real British hoppy quality. I can't wait to get my hands on a GFA next.

I bought mine from ASDA in Portsmouth.


Gluten Intolerance and Ulcerative Colitis: from Loye on 2009-09-22

Thanks to everyone who has posted in this discussion. I was diagnosed with UC about 4 months ago. Had urgency issues, and uneasy stomache for about a year and a half before I went to a GI. He did colonoscopy and said I had UC confined to the distal end, so more like proctitis. Prescribed Canasa (mesalamine) suppositories. No real improvement after 2 months. Then, he added Proctocort suppositories. Still no real improvement.

Here's the kicker. My dad has had definitely diagnosed CD for the past 25 years. This GI doctor refused to run celiac testing because I am overweight! He said if I had it, I would be a stick. I don't believe him, not with all I've read on the internet from reputable sites (Mayo Clinic, GI sites,etc.)

I have my next appointment with him in 3 months. I am going strickly gluten free until my next visit. We shall see what happens. After reading some of these messages, I have real hope that I can manage this. I have the advantage that I understand the GF diet very well, having cooked for my dad for years

Gluten Intolerance and Ulcerative Colitis: from Loye on 2009-10-11

Update: I've been gluten free for nearly a month, and what a difference. I can't say I haven't had a "bad day", but I'd say I am already 90\% there! I am using the Canasa and Proctocort, alternating days, and after another month or two more on the gluten free diet, I'll try to do without them.

I can't wait to tell this doctor in December. He'll brush it off, but I don't care. We need to be our own advocates. I wouldn't say my doctor doesn't care, I just think a majority of doctors don't care enough to look into what is working for people, even if they didn't learn it in medical school. As long as it does no harm, it's the results we're after isn't it

Re: What you can eat on a gluten-free diet: from theresa on 2009-10-11

I was wondering if you might try to heal the rash from the outside as well by trying a ckickweed bath? It works on very itchy rashes including egzema. You need quite a bit of it boiled in a large pot someyimes I put a very small drop of olive in it. I find chickweed growing everywhere outside. Sorry I am not aware of your climate I am in Calgary, Canada

epilepsy, seizures and gluten: from Allison on 2009-10-14

I rarely post on any message board but I am so excited to find this thread! We have an almost 4 year old son who was just recently seen at the Children's Hospital in Denver for what we think is absense seizures. An EEG revealed some abnormal brain activity in the occipital lobe, and the neurologist ordered an MRI for further testing. In the meantime, however, they suggested that we begin our son on daily doses of Lamotrigine (Lamictal) as a means to subside the seizure activity. My husband and I have extreme reservations about putting him on this medication, especially since no formal diagnosis has been made.

We implemented some dietary changes based on our own research on childhood seizure disorders and noticed that after only two weeks of gluten-free eating, we have not seen a single seizure occur. I will post again after more time passes to see if we are still on this positive trend.

We have discussed the possiblity of asymptomatic celiac disease with our neurologist and she remained insistent on the pharmaceutical treatment. We are seeking a second opinion.

PLEASE read, research and ask questions before medicating your children! I will certainly post again when more information is available.

Re Gluten Intolerance and Ulcerative Colitis: from Jessi on 2009-11-05

I was diagnosed with ulcerative proctitis and just last week diagnosed also with inactive colitis. I insisted on a blood test for celiac which came back negative but that I have read isn't surprising.

I don't believe in relying on drugs to mask these symptoms so I started on a gluten free diet 4 days ago and I haven't felt this good in 3 years! I totally believe that I am gluten sensitive or have celiac. I believe that this undiagnosed sensitivity has caused the colitis. Even though I am just new to this gluten free diet I am so happy and proud of myself.

In my opinion doctors don't "want" to test and diagnose for celiac or gluten sensitivity because there is no drug that they can prescribe because its all about diet. It's easier for them to label it IBS or colitis

Re: Gluten Intolerance and Ulcerative Colitis: from Tom Contini on 2009-11-06


I've been in a bad way, ever sence 93' active duty army, v.a. called it different stuff, but it was figered out in 2000 that it was ulcerative colitis by a civilian doctor. I was put on asacol and think that its great, but it relieves the pain and relapes.( up to 12 pills a day)but I dont think i can live on this so to make this short im o pos blood and eating for my blood type no gluten no recordable results yet but feel better and loss of pounds. but i do beleve it is true ate wheat bread allways, and its in everything

thanks good by