475.Infertility and Coeliac Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance, Cookery and recipes

Infertility and Coeliac: from Claire on 2006-04-13

Hi there,
I would like a couple of answers to questions I have if thats possible.
Last year I was diagnosed with depression, Ive never actually felt depressed as such, my symptoms were extreeme tiredness. I dont really know how to describe it, i felt that i could'nt concentrate, I was very short tempered, and also could sleep and sleep.
I also suffer with endemetriosis and suffering infertility problems, I sought advice to deal with this a natural way and was advised to do a 28 day detox diet.( meat wheat and dairy free) and although I found this diet really hard I felt great.
so when I completed this diet I stayed off chocolate, caffene and wheat and gluten and limit my dairy intake.
since doing this i have been researching wheat & gluten intolerence, i realise I have had many symptoms such as dermatitis and severe rashes, bloating and I suspected that I was starting with something like IBS.
Although I was diagnosed with deppression last year this has been going on for some time.
My main question is, if i do suffer with this condition apart from infertility problems do you think it would have any effect on miscarrage as I have had several.
I do have a doctors appointment but this is in 3 weeks, I know you cant give medical advice but would appreciate your thoughts on this matter. Thanks.

Infertility and Coeliac: from s) Hin H ; Ford F
Affiliation Centre for Pregnancy N on 2006-04-13

Here are summaries of three recent medical papers linking the coeliac condition to infertility problems and miscarriage. The link is well recognised.
I hope this answers your question.

Peter

1999 Feb; 106(2) 171-3
Additional Info ENGLAND
Standard No ISSN 0306-5456 (Print); NLM Unique Journal Identifier 7503752
Language English
Abstract Because subclinical coeliac disease may decrease fertility or complicate pregnancy, we screened women with recurrent miscarriage of unknown aetiology (n = 63), unexplained infertility (n = 47) and infertility with a known cause (n = 82), for anti-endomysium antibodies in serum to find undiagnosed coeliac disease. One woman (1-6\%) with recurrent miscarriage, another woman (2.1\%) with unexplained infertility and one woman (2.0\%) in the control group (n = 51), were considered to have coeliac disease. We could not demonstrate a higher frequency of coeliac disease in women with infertility or recurrent miscarriage, but suggest that undiagnosed coeliac disease is common in women.

2004 May 17; 180(10) 524-6
Additional Info Australia
Standard No ISSN 0025-729X (Print); 1326-5377 (Electronic); NLM Unique Journal Identifier 0400714
Language English
Abstract Coeliac disease (CD) is caused by a complex immunological response provoked by grain protein in susceptible people. The majority of people with CD are symptom-free adults; the remainder are prone to a bewildering variety of signs and symptoms, ranging from infertility to type 1 diabetes. Many patients with undiagnosed CD spend years seeking help for complaints such as chronic tiredness or mild abdominal symptoms. In primary care, an appropriate target group to test for CD is people with anaemia (especially women), chronic tiredness, non-specific abdominal symptoms (including so-called "irritable bowel syndrome"), or a family history of CD. The response to an appropriate gluten-free diet is often life-transforming for symptomatic patients. Positive serological tests for CD require confirmation by duodenal biopsy and, if confirmed, referral to a dietitian and a coeliac society, followed by a life-long gluten-free diet.

2002; 12(4) 94-7
Additional Info England
Standard No ISSN 1474-9114 (Print); NLM Unique Journal Identifier 101142028
Language English
Abstract Undiagnosed coeliac disease is not uncommon in adults in the UK and can be a cause of unexplained infertility in women. Studies suggest that dietary treatment of women with coeliac disease may result in successful conception. The diet of a woman with coeliac disease during pregnancy is discussed and agencies offering support are listed.

Infertility and Coeliac: from Claire on 2006-04-13

Thank you very much for your reply, this infact does answer alot of questions for me. And will be armed with relevent information when I see my doctor!
I found myself a bit in limbo when i had questions and no answers and now feel much more positive.
I would like to hear from others who are in my situation.
Many Thanks
Claire

Infertility and Coeliac: from Melanie Martin on 2006-06-08

I was diagnosed with Celiac disease 7 years ago, at age 26.
I began having irregular periods in my early teens,( missing 3 or
4 months in a row was normal). I had depression, mood swings,
extreme irritability, for years. At age 21 I miscarried at 2 months along, the one and only time I have been pregnant. At age 21 I saw a Doctor due to my erratic mood swings (my husband took me) and my blood tests showed a hormone imbalance.
I was put on the pill- as my body wasn't producing enough estrogen on it's own.
I was told if I wanted children, I'd probably have to seek fertility treatments, as you need balanced hormones to carry through a pregnancy. I believe this was all Celiac disease related. Now, I remain on the pill for life, and follow a gluten free diet. Tiredness is definitely a symptom of gluten contamination- I have that reaction if I have some by mistake as do other Celiacs I've talked to. Celiac disease is responsible for my mood disorder. Miscarriage can be more common in Celiacs- but I have known many Celiac women who have had children no problem- so it is definately possible. I never wanted children so it wasn't an issue for me. I think that if you are unhealthy (as in untrreated Celiac disease) that miscarriage is natures way of taking care of you, as you are not healthy enough to maintain a pregnancy without risk to your own health. Once you are gluten free and get healthy I would think you should be able to carry through a pregnancy. People with Celiacs don't absorb B-vitamins well- B vitamins are important for level moods and not feeling tired.Definitely good to talk to your doctor,a s I'm just giving opinions. Good luck.

Infertility and Coeliac: from Deborah on 2006-08-10

Hi
Does anyone out there have similar problems to my own that can help or give advise. I am a 40 year old women and have been trying for a child for 18 years. I have had 7 pregnancys in total of which two were still born boys. The first was Thomas he had microcephaply ( a massive cyst in place of his brain), the 2nd boy was hydrocephaly (water on the brain). The other pregnancys were miscarrages between 6 weeks and 3 months. I have been tested for every conceivable problem and all results including chromosomes tests have come back normal. I have recently been having bowel problems and pains in my stomach, upon visiting my doctor he suggested that I may have irritable bowel syndrome, he also took some blood and I am at the moment waiting for these results to see if I have celiac disease. Could it be after all these years that my problem for carrying a child and it not developing normally is celiac disease. Is my body not capable of providing a baby with the essential nutrients for normal development and growth? because of this disease. I have read that celiac disease can affect women and cause reccurrent miscarriage and neural tube abnormalities, this seems to be very coincidental with my own circumstances. I have also read that the test results can come back negative although the disease is apparent.
I would apprecaite any comments or information that anyone could give me that could help
Thank you
Deborah

Infertility and Coeliac: from Laura B on 2007-03-06

If you have coeliac, it could block your uptake of B vitamins. Ask the doc to access your homocysteine levels which are associated with the types of problems you described. If you have high homocysteine take the activated form of folate, not just the regular sort and it should help.



Also, don't try to lose weight when getting pregant.



I just had a baby girl at age 44--no fertility treatments.



Good Luck!

Infertility and Coeliac: from Claire on 2007-07-05

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Hi, I have been a coeliac for about 6 years now and have managed my diet very well and it is under control with no problems but I recently found out I was pregnant which I was over the moon about because that is the one thing in the world I want more than anything, I was about 10 weeks gone when I started to bleed, of course I was very upset and went straight to hospital, I had a scan and was told they could not see what was in my womb because it was too small and it was either a very early pregnancy about 5-6 weeks not what had been orginally calculated or I was miscarring, and had to ait a week for another scan and they would hopefully be able to see more, during the next few days the bleeding and pain got worse and had to speak to the doctor and from my symptoms the doctor said I was having a micarriage which is still happening at the moment, im totally devistated and dont know what to think, im so dissappointed and upset, my doctor has managed to bring forward the scan to tomorrow to see how things are progressing, but I was wondering if being a coeliac has caused me to have a miscariage?
I would appreciate any advice anyone has for me.
(Im 26 and this was my first pregnancy)

Infertility and Coeliac: from Peter on 2007-07-05

A suprisingly large proportion of early pregnancies end in a miscarriage.
This is a natural part of the process of checking that the fertilised egg is viable and developing correctly, has correctly implanted, and so on.

Since you have your diet under control without any problems it is unlikely that your chances of a miscarriage differ from anyone else in the population. It is unlikely to be related to being coeliac.

You have been unlucky here but it is not your fault.

Infertility and Coeliac: from Michelle on 2008-03-25

I believe they are linked as I have had several miscarriages during my life and have been able to have one child naturally ( she is 12 ) my husband and I are on fertility treatments now and I believe this is all tied to me being an undiagnosed coeliac for most of my life with anemia, low iron, low blood pressure etc. I have been diagnosed recently ( Xmas 2007 ) so I am hoping that this will make a difference. - Michelle